“by failing to adjourn the proceedings to allow the proposed appellants to be legally represented, the court breached the proposed appellants’ fair trial rights protected byArticle 6 ECHR .”
“In any event our new legal advocates will need time to prepare our case, they will also need time to instruct an independent expert for the case, in this light we request that the case is adjourned for a minimum of three weeks.”
“My kind request to everybody and to you – A needs some time – if ask to give certificate and how doctor previously certified. Can only feel him and tell you he will recover – my trust because of how he’s recovered. Nobody had an answer. How can I believe the answer [?]”
“21. All the treating clinicians led by Dr Z [the treating intensive care consultant] have expressed real professional concern at the impact on the parents of A’s spontaneous recommencement of breathing after his parents had been so consistently reassured that he was dead. It is hardly surprising in these circumstances that they query the medical prognosis. During the course of F’s evidence, he told me that medical science does not know everything and professional views change. He told me that he put his faith in “my Allah” to intervene. F and M wish their son to be ventilated in the hope that there will be some seismic change in the medical understanding, delivered through divine intervention. F spoke on behalf of the couple, though M was able to say a few words. I found F to be immensely articulate, reflective, and honest. The magnitude of his love for his son was palpable. He was dignified, strong, and resilient. His evidence was deeply moving. 22. Dr Z and Dr B [the independent expert instructed by the guardian and the parents] both recognised and articulated the need for professional humility in this most challenging situation. I pause, simply to say, that which is obvious but might get lost in the detail of the medical evidence. A had been declared dead and started, spontaneously, to breathe, not gasping but in a regular rhythm with barely any need for a ventilator in this very short period. For this couple, committed to their faith and to the power of prayer, this must truly have seemed to be a miracle.”
“For reasons which I entirely understand, they make a distinction, in their faith, between that which is the will of Allah, which they would perceive cardiac arrest to be, and the obligation in their faith to promote life at all costs.”
“40. My unwavering focus must be fixed on that which I assess to be in A’s best interests. I have taken time to survey the broad canvas of the evidence in this case, as I am obliged to do, and not merely the medical evidence. The spectrum here, given A’s short life, is narrower and more circumscribed than in some cases. Nonetheless, the culture and faith into which A has been born is an important factor, however difficult it might be to calibrate the weight to be afforded to it. Ultimately, the severity of A’s brain injury, the complete absence of any ability to benefit from treatment, the impossibility of excluding potential for residual pain and the burden of the treatment itself illuminate mechanical ventilation as contrary to A’s best interests. 41. There is unique value in human life, frequently referred to as the ‘sanctity of life’. That does not dissipate where awareness diminishes, or the capacity of the brain becomes so corroded that all autonomy is lost. It is perhaps in these circumstances that it requires the most vigilant protection. The evidence is clear that A is now dying and will die, at some indeterminate point, whether ventilated or not. To continue ventilation will serve here only to protract death. In simple terms, it would confer harm without conveying benefit. That cannot be reconciled with the ethical obligations of the treating clinical team nor can it be in A’s best interests. For this reason, the ventilation should be withdrawn, and palliative care provided. 42. This case has raised real and important questions as to the confidence that can be placed in the Code of Practicefor the Diagnosis and Confirmation of Death in cases involving infants. The identified conditions necessary for the prognosis and confirmation of death (para 5) may need to be reviewed, as Dr B suggests, particularly in the context of babies under 6 months of age and those with open fontanelles (as here). I have been told that the Royal Academy of Medical Colleges are considering their guidelines and that these are being reviewed, both at a national and international level. In other countries, for example, the USA and Australia, a test of whole brain death is applied. I should record that I have been told that the application of this test here, would have yielded the same results. Dr Z has told me that the advice and guidelines are anticipated relatively quickly. Though I do not want to be prescriptive, I record that it strikes me that the appropriate application in most cases concerning infants, or at least until further guidance is received, is to make an application predicated on the patient’s best interests rather than to seek a certification of brain stem death.”
“43. It is important that I record that a preliminary application was made by the parents for an adjournment to seek legal representation. The application was made on the morning of the final hearing. I was unable to allow it. By this stage, the proceedings had already been before the Court for over a month. The treating clinicians and the court appointed expert were in attendance at Court to give evidence. 44. A is in a parlous condition. It was said, by the Trust, that he was “dying on the ventilator”
“Human rights continue to be protected by our domestic law, interpreted and developed in accordance with the Act when appropriate.”
“… The ordinary approach to the relationship between domestic law and the Convention [has been] described as being that the courts endeavour to apply and if need be develop the common law, and interpret and apply statutory provisions, so as to arrive at a result which is in compliance with the UK’s international obligations, the starting point being our own legal principles rather than the judgments of the international court.”
“As everybody who has anything to do with the law well knows, the path of the law is strewn with examples of open and shut cases which, somehow, were not; of unanswerable charges which, in the event, were completely answered; of inexplicable conduct which was fully explained; of fixed and unalterable determinations that, by discussion, suffered a change. Nor are those with any knowledge of human nature who pause to think for a moment likely to underestimate the feelings of resentment of those who find that a decision against them has been made without their being afforded any opportunity to influence the course of events.”
“… justice is intuitively understood to require a procedure which pays due respect to persons whose rights are significantly affected by decisions taken in the exercise of administrative or judicial functions. Respect entails that such persons ought to be able to participate in the procedure by which the decision is made, provided they have something to say which is relevant to the decision to be taken.”
“It therefore seems to me that issues such as the one raised in the present case will of necessity be fact specific; it will be necessary to look at all of the elements that were in play before the judge who decided to adjourn or not adjourn a set of proceedings.”
“4. Publishing Restrictions This Order prohibits the publishing or broadcasting, in any newspaper, magazine, public computer network, internet site, social network or media including Twitter, Facebook, WhatsApp, SnapChat, You Tube and any other sound or television broadcast or cable or satellite programme service of: a. any information (including any photograph, name and/or address) that is likely to lead to the identification of any of the following i. Any of the Respondents or any member of their family including other children of the family. ii. Any individual having day-to-day care of or medical responsibility for the First Respondent and/or in the withdrawal of treatment from the First Respondent. iii. Any clinician who has provided second opinions or advice to the Applicant in the management of the First Respondent’s care, treatment and/or diagnoses. iv. Any witness (other than any expert witness) who gives evidence in these proceedings whether by statement or otherwise in writing or orally b. Any picture including any picture of any of the Applicant’s witnesses and/or of the individuals identified in paragraphs 4(a)(i)-(iv) above. c. Any other particulars or information relating to the Applicant’s witnesses and/or of any individuals identified in paragraphs 4(a)(i)-(iv) above. d. Any reference to the following matters: i. the question of non-accidental injury; ii. the involvement of the police in investigations of the First Respondent’s injuries; iii. potential criminal proceedings, including charges (if any) which might come to be made; iv. the existence, resolution or termination of any care proceedings. IF, BUT ONLY IF, such publication is likely to lead to the identification of those listed at paragraphs 4(a)(i)-(iv) above as being a party to these proceedings, whether such identification be to the public at large or to those who know them or as being a party to these proceedings. 5. Other restrictions No publication of the text or a summary of this Order (except for service of the Order under paragraph 7 below) shall include any of the matters restricted by paragraph 4 above or any of the information in Schedule 1. 6. What is not restricted by this Order Nothing in this Order shall prevent any person from: a. Publishing the identity of the Applicant. b. Publishing information relating to any part of a hearing in a court in England and Wales (including a coroner’s court) in which the court was sitting in public and did not itself make any order restricting publication. c. Seeking or publishing information which is not restricted by Paragraph 4 above. d. Inquiring whether a person or place or other matter falls within paragraph 4 above e. Seeking information relating to those that fall within paragraph 4 above while acting in a manner authorised by statute or by any court in England and Wales. f. Seeking information for the responsible solicitor acting for any of the parties or any appointed press officer, whose details are set out in Schedule 2 to this Order. g. Seeking or receiving information from anyone who before the making of this Order had previously approached that person with the purpose of volunteering information (but this paragraph will not make lawful the provision or receipt of private information which would otherwise be lawful). h. Publishing information which before the service on that person of this Order was already in the public domain in England and Wales as a result of publication by any person in any newspaper, magazine, sound or television broadcast or cable or satellite programme service, or on the internet website of a media organisation operating within England and Wales.”