‘Activity 5 – Managing toilet needs or incontinence This activity considers a claimant’s ability to get on and off the toilet, to clean afterwards and to manage evacuation of the bladder and/or bowel, including the use of collecting devices. This activity does not consider the ability to manage clothing, climb stairs or mobilise to the toilet. Notes: Toilet needs means the ability to get on and off the toilet, evacuation of the bladder and bowel and clean oneself afterwards. Managing incontinence means the ability to manage involuntary evacuation of the bladder and/or bowel including self catheterisation, incontinence pads, using collecting devices and clean oneself afterwards. Claimants with indwelling (permanent) catheters or stoma are considered incontinent for the purposes of this activity. Descriptor A may be appropriate for claimants who use a commode due to limited mobility (to the toilet) but can manage their toilet needs or incontinence. If the urinary tract is normal there will be little risk of incontinence no matter how long it takes to mobilise to the toilet. If there is, for example, a bladder problem and the claimant will be incontinent before they reach the toilet, then the commode is being used as aid for the bladder condition (toilet needs) not the mobility problem (mobility needs). Urinary tract conditions that cause urgency of micturition will be relevant, other urinary tract conditions may not be relevant. JM v Secretary of State for Work and Pensions (PIP)[2016] UKUT 0296 (AAC) UK/5352/2014 4 When considering whether a claimant requires an aid or appliance, HPs should distinguish between: • an aid or appliance that a claimant must use or could reasonably be expected to use, in order to carry out the activity safely, reliably, repeatedly and in a timely manner; and • an aid or appliance that a claimant may be using or wish to use because it makes it easier to carry out the activity safely, reliably, repeatedly and in a timely manner. Descriptor advice in favour of an aid or appliance should only be given in the former case. An aid or appliance is not required in the latter. Where a claimant chooses not to use an aid or appliance that he or she could reasonably be expected to use and would enable them to carry out the activity without assistance, they should be assessed as needing an aid or appliance rather than a higher level of support. A Can manage toilet needs or incontinence unaided. B Needs to use an aid or appliance to be able to manage toilet needs or incontinence. For example: suitable aids could include commodes, raised toilet seats, bottom wipers, incontinence pads or a stoma bag C Needs supervision or prompting to be able to manage toilet needs. ‘ 9 Further guidance on some of the terms is given in later paragraphs of the guide: Aids and appliances 3.2.18. The assessment takes into account where individuals need aids and appliances to complete activities. In this context: • Aids are devices that help a performance of a function, for example, walking sticks or spectacles. • Appliances are devices that provide or replace a missing function, for example artificial limbs, collecting devices (stomas) and wheelchairs. 3.2.22. Claimants who use or could reasonably be expected to use aids to carry out an activity will generally receive a higher scoring descriptor than those who can carry out the activity unaided. 10 Based on the advice in the guide, the HP who conducted the face to face interview with the appellant awarded him 2 points for descriptor 5b. 11 The DWP’s advice is of persuasive value, but it is not law, and the F-tT took chose to depart from their view by taking away the 2 points. The question it asked itself was whether the stoma/bag combination constituted an ‘aid or appliance’ which automatically invoked descriptor 5b (‘You need an aid or appliance to manage your toilet needs or incontinence’). It decided that it did not. Instead, it decided that the combination constituted an artificial extension or bypass of the bowel, which did not JM v Secretary of State for Work and Pensions (PIP)[2016] UKUT 0296 (AAC) UK/5352/2014 5 of itself need either special equipment or third party assistance to empty. The F-tT conceded that this interpretation was arguable and that it might be wrong. Discussion of Activity 5 12 The descriptors the F-tT had to deal with are convoluted. It is understandable that a F-tT dealing with a complex matter such as the one underpinning this appeal would not have got to the heart of the problems arising from the definition of managing incontinence in paragraph 1, Part 1 of Schedule 1 and what the activity was meant to achieve. 13 I shall confine the discussion to bowel problems unless it is necessary to do otherwise. 14 The definition envisages needs arising from the functioning of the bowel (evacuation) over which the claimant has no control ‘including use of a collecting device’