"You mention that the information you have at present was the most accessible. Is there a reason as to why you do not have access to my daughter's clinical notes pre 04.06.06? [As I have pointed out, Alexis was in hospital from as early as the spring of 2005]. Also, why after six weeks do you not have access to the other records I have requested? In particular the oncology notes and oncology pharmacy prescriptions, these documents should have been put in store along with the others when my daughter died in June of this year."
"Official Complaint As I have not received an acknowledgement to the email I sent you on 21 October re: Pseudomonas statistics and as I am still waiting for the requested statistic and copy documents in whole (please see emails below) regarding my daughter's medical records, I am now making a formal complaint through your office regarding the failure to provide the information request. It is bad enough that your staff appear to be incapable of doing the job they are being paid for; they now (after four months) expect me to do it for them. I consider that St Thomas' have had sufficient time to produce the information I have requested."
"With regard to the ongoing search for my daughter's paper and electronic records again leaves me failing to understand the problem. My daughter died on the 12th of June, why have her records, letters, emails, notes of meetings etc, etc not been collected together and archived? The fact that she was seen by several departments across the hospital sites is irrelevant; you have her name and her hospital number. Nor does it explain why Ms Kelly chose to enclose letters with the copy documents I have received stating that she had enclosed documents that had not been sent, why certain pages are missing from those I have received or why nothing was done for the first two months from the time I made the request. Your para 4 - I beg to differ, the copy documents are exactly what I require, there will be time for questions and queries once I have carefully checked them, to which I expect answers..."
"Alexis was under our care for many years, a significant number of these as an in-patient. Consequently, this was one of the largest case-note searches that the Trust has ever undertaken. We estimate that we have retrieved approximately 95% of the thousands of records generated across multiple departments and sites. We appreciate that this is simply not good enough and we sincerely apologise for the case-notes that we have, to date, not been able to source. I can confirm that the General Managers responsible for the areas where we believe notes to be outstanding are continuing to search for records, and if or when additional notes are identified we will courier these to you without delay."
"To correct you, Alexis (apart from a few weekends) spent all of the five and a half years in hospital. I reiterate if it is a case of one file or a hundred files (paper or electronic) there is no excuse for your paperwork to be in the state you are claiming it to be in. The fact that she was in hospital for the length of time she was made it all the more important that her records be carefully kept..."
"I have requested a copy of our deceased daughter's medical records, letters, emails, notes of meetings etc held by the hospital (both paper and electronic). The hospital have not supplied all the requested documentation despite repeated requests for them. I have followed the hospital complaints procedure via the Chief Executive to no avail."
"This was distressing enough, but to then be forced to spend eight months plus trying to obtain a full copy of our daughter's records etc has been devastating, stressful and has added to our distress. The excuse that the documentation cannot be found is outrageous and unacceptable." [Emphasis added]
"I expect the hospital to meet its legal obligations by finding and supplying me with a copy of the missing information. They claim that they have sent me 95% of the documentation, whereas it is closer to 50%. They have not met the set time in which to respond to my request, and they have explicitly withheld information. I have enclosed a copy of the exchange of correspondence (emails and letters) together with Excel sheets showing: (i) documents requested and actually received (ii) documents missing/to be supplied."
"Mr Bennett refers to a conversation I had with him by phone on9 July 2012 , and exhibits a note of that conversation ... I accept that I told him that I wanted copies of the missing medical records. But it was not the only matter of complaint that I covered when I spoke to him. In particular, I made it clear that I could not believe that such a significant number of medical records could simply go missing without proper explanation. I explained my concerns at some length and Mr Bennett could have been in no doubt that I was calling into question the record-keeping system of the Trust and seeking answers to that question ... More specifically, he further stated that he would consider what steps the Trust had taken to try and obtain the records."
"Spoke to Mrs Morris. I explained how we would look at her case and that our consideration would be in respect of the actions the Trust had taken to resolve the complaint and the responses it had provided. I explained that we consider if something has gone wrong and if so the injustice to the person, but we have to consider if we could reasonably achieve anymore. I said that we could not search the hospital for the records and therefore I would consider what the Trust had done to try and obtain the records that she was requesting. As a result of her complaint she wants the missing records. I asked about the spreadsheet she had provided and she said she knew which records were missing and only 50% were provided rather than 95%. She used examples that all of the oncology records were missing and said that nobody had checked what was sent out to her. She asked if there was anywhere she could go that could force the Trust to release the records. I said that we were the last part of the NHS complaints process and she suggested that a court could. I said that I could not advise on legal issues and explained that we cannot look at cases where legal action is ongoing - but this is not the case here. I said that I did not want to raise her expectations that we could get further records from the Trust, but said that I would be contacting the Trust to understand the actions it had taken."
"...I confirmed with the claimant that what she was seeking through our investigation was to be provided with copies of the missing medical records. This is my recollection of our conversation and it is confirmed by the note I took of our conversation."
"I was as clear as I possibly could have been in my contemporaneous notes ... that the claimant stated 'As a result of her complaint she wants the missing records'. From the way I write my notes I am clear that that is all she wanted. Had she wanted other outcomes I would have recorded those in my contemporaneous notes. However she did not do so."
"We have contacted the Trust to try and understand the actions it has taken to try and retrieve all the records. It is clear that the Trust has devoted a considerable amount of time in trying to retrieve the records and a number of senior staff have been involved in the process. Whilst it does not excuse the Trust's inability to find the records, we are not persuaded that more could be done to locate the records. At some point the decision needs to be made that no more records are going to be found and we consider that the decision was only taken after reasonable efforts had been made to locate them. Clearly the Trust could continue to look for the records indefinitely, but this would not be a proportionate way to address the issue..."
"Your para 5. There is no doubt that a clear failing in the service provided by the Trust in supplying a large part of my daughter's medical records to which her father and I have legal right is more than evident, that is injustice enough. And yes we have been negatively affected by the added distress this is causing us on top of our daughter's death. And yes, you could reasonably achieve more by considering this complaint further; you could ensure that the missing documents are produced."
"The Trust has already said that other missing files and documentation were distributed throughout the hospital, these would have been sitting with various departments or clinics e.g. the oncology and chemotherapy clinics, the endoscopy clinic, various admin and secretarial offices to name a few. The Trust has not offered an explanation as to why these documents were not archived. That the PHSO consider that the loss of these records from every one of these departments, clinics or offices is reasonable or in any way acceptable; in my opinion (and I do not stand alone) is both naive and inconceivable. There must be some procedure in place through which deceased patients' documents are archived or chased up when archiving is not forthcoming. If potential archive material is missing, then are you saying that nobody followed any of that procedure?"
"Mr Bennett records the outcome Mrs Morris wanted in the following terms: 'As a result of her complaint Mrs Morris wants to receive the outstanding records from the Trust'. Under the heading of indications of maladministration, he records that Mrs Morris' primary concern is that the Trust has been unable to obtain the records. It is clear from the discussion we had with our client that her object was either to receive the records or, failing that, to have their loss verified by an independent person, who would also investigate the circumstances in which they were lost to see whether there was a satisfactory explanation for their disappearance. In our view, you can only assess the utility of investigating if you have reliably determined the outcome sought ... Had Mr Bennett properly characterised the purpose of the complaint, he or the decision-maker might have reached a different conclusion on the need for further investigation."
"30. The law, as set out by both the Act and its interpretation in previous decisions, is that the hurdle which has to be surmounted by any claimant seeking to persuade a court that an exercise of discretion by the Ombudsman is unlawful is a very high one indeed. The relevant leading decision is R v Parliamentary Commissioner for Administration ex p Dyer[1994] 1 WLR 621 where Simon Brown LJ, as he then was, giving the judgment of the Divisional Court made it clear that the width of the discretion was, as he put it, made 'strikingly clear' by the legislature. That is a reference to the provision which is now in section 3(5) that the Commissioner should act in accordance with his own discretion. He said that it would always be difficult to mount an effective challenge on what may be called the conventional ground of Wednesbury unreasonableness. While manifest absurdity perhaps did not have to be shown, it would be almost as difficult to demonstrate that the Commissioner had exercised one or other of his discretions unreasonably in the public law sense..."
"This necessarily raised issues that the Trust had: (1) failed to archive numerous important medical records held by it relating to Alexis; (2) failed adequately to search for all the records; (3) failed to locate numerous important records which it had recently held relating to Alexis; (4) failed to independently verify that it had adequately searched for all the records and that it was no longer able to locate all the records. Had it so identified these failures, the function of the Ombudsman would have included identifying the systemic shortcomings in the Trust that resulted in (1), (2) and (3)." [Emphasis supplied]