“These problems have been ongoing since childhood and there has not been a recent drastic change in his condition, rather he never seems to have acquired a stable, independent gait…”
“A.Working Together with Parents Network Update of the DoH/DfES Good Practice Guidance on Working with Parents with a Learning Disability (2007) (Sept 2016 update) §1.2.5 Local protocols should clearly specify responsibilities for assessment and care planning. Good practice is promoted where there is clear agreement between adult and children’s social care as to the circumstances in which single or joint assessments are required and who should take the lead. For example: • Adult learning disability and children’s services jointly co-ordinate assessment and care planning where parents need support in the medium to long term to enable them to meet their children’s developmental needs; • Children’s services lead assessment and planning (with specialist input from adult learning disability services) where intervention is required to prevent children suffering impairment to their health or development or significant harm and/or there is a disabled child in the family. Whatever level of concern there is about children’s welfare, practitioners need to be aware of parents with learning disabilities’ legal entitlement to timely and appropriate support, and to ensure that they receive the assessment and service response they are entitled to. §1.3.7 Parents may need emotional support. Parents with learning disabilities may have low self-esteem and lack confidence because of previous life experiences. They may therefore need support to build their confidence. Parents may particularly need emotional support when children’s social care become involved because of concerns about children’s welfare. Fear that children are going to be taken away can make it harder for parents to respond positively to assessments and interventions. In such circumstances, parents need support from someone who they feel is “on their side” and who can help them positively engage with services. Such support is often provided by adult learning disability services, and by independent sector services and advocates. See also: • Section 3: Good practice in commissioning • Appendix A: What do we know about the needs and circumstances of parents with learning disabilities? Equal Rights The UN Convention on the Rights of Persons with Disabilities (CRPD) (adopted13th December 2006 ) Article 1 - PurposeThe purpose of the present Convention is to promote, protect and ensure the full and equal enjoyment of all human rights and fundamental freedoms by all persons with disabilities, and to promote respect for their inherent dignity.Persons with disabilities include those who have long-term physical, mental, intellectual or sensory impairments which in interaction with various barriers may hinder their full and effective participation in society on an equal basis with others. Article 2 – Definitions…“Discrimination on the basis of disability” means any distinction, exclusion or restriction on the basis of disability which has the purpose or effect of impairing or nullifying the recognition, enjoyment or exercise, on an equal basis with others, of all human rights and fundamental freedoms in the political, economic, social, cultural, civil or any other field. It includes all forms of discrimination, including denial of reasonable accommodation.“Reasonable accommodation” means necessary and appropriate modification and adjustments not imposing a disproportionate or undue burden, where needed in a particular case, to ensure to persons with disabilities the enjoyment or exercise on an equal basis with others of all human rights and fundamental freedoms. Article 4 – General obligations1. States Parties undertake to ensure and promote the full realisation of all human rights and fundamental freedoms for all persons with disabilities without discrimination of any kind on the basis of disability. To this end, States Parties undertake:…(c) To take into account the protection and promotion of the human rights of persons with disabilities in all policies and programmes;(d) To refrain from engaging in any act or practice that is inconsistent with the present Convention and to ensure that public authorities and institutions act in conformity with the present Convention;…(i) To promote the training of professionals and staff working with persons with disabilities in the rights recognised in the present Convention so as to better provide the assistance and services guaranteed by those rights. Article 23 – Respect for home and the family…2. States Parties shall ensure the rights and responsibilities of persons with disabilities, with regard to guardianship, wardship, trusteeship, adoption of children or similar institutions, where these concepts exist in national legislation; in all cases the best interests of the child shall be paramount. States Parties shall render appropriate assistance to persons with disabilities in the performance of their child-rearing responsibilities.3. States Parties shall ensure that children with disabilities have equal rights with respect to family life. With a view to realising these rights, and to prevent concealment, abandonment, neglect and segregation of children with disabilities, States Parties shall undertake to provide early and comprehensive information, services and support to children with disabilities and their families.4. States Parties shall ensure that a child shall not be separated from his or her parents against their will, except where competent authorities subject to judicial review determine, in accordance with applicable law and procedures, that such separation is necessary for the best interests of the child. In no case shall a child be separated from parents on the basis of a disability of either the child or one or both of the parents.… B. Factitious or Induced Illness (“FII”) and Perplexing Presentation (“PP”) §3.2.3 Fabricated or Induced Illness (FII) FII is a clinical situation in which a child is, or is very likely to be, harmed due to parent(s) behaviour and action, carried out in order to convince doctors that the child’s state of physical and/or mental health and neurodevelopment is impaired (or more impaired than is actually the case). FII results in physical and emotional abuse and neglect, as a result of parental actions, behaviours or beliefs and from doctors’ responses to these. The parent does not necessarily intend to deceive, and their motivations may not be initially evident. It is important to distinguish the relationship between FII and physical abuse / non-accidental injury (NAI). In practice, illness induction is a form of physical abuse (and in Working Together to Safeguard Children, fabrication of symptoms or deliberate induction of illness in a child is included under Physical Abuse). In order for this physical abuse to be considered under FII, evidence will be required that the parent’s motivation for harming the child is to convince doctors about the purported illness in the child and whether or not there are recurrent presentations to health and other professionals. This particularly applies in cases of suffocation or poisoning. §4.1 Parent/Caregiver motivation and behaviour Both clinical experience and research indicate that the mother is nearly always involved or is the instigator of FII. The caregiver may be a single parent, or may be acting alone, unbeknown to the father. The involvement of fathers is variable. The father may be unaware, be suspicious but side-lined or may be actively involved. Rarely, fathers are solely involved. The parent may be actively supported by grandparents and there may be an intergenerational pattern. Rarely, foster carers have been known to be involved in FII. There is currently no data on same sex parental couples. FII is based on the parent’s underlying need for their child to be recognised and treated as ill or more unwell/more disabled than the child actually is (when the child has a verified disorder, as many of the children do). FII may involve physical, and/or psychological health, neurodevelopmental disorders and cognitive disabilities. There are two possible, and very different, motivations underpinning the parent’s need: the parent experiencing a gain and the parent’s erroneous beliefs. It is also recognised that a parent themselves may not be conscious of the motivation behind their behaviour. Both motivations may be present although usually one predominates. (i) In the first, the parent experiences a gain (not necessarily material) from the recognition and treatment of their child as unwell. The parent is thus using the child to fulfil their needs, disregarding the effects on the child. There are a number of different gains - some psychosocial and some material. Some parents benefit from the sympathetic attention which they receive; they may fulfil their dependency needs for support, which might include the continued physical closeness of their child. Parents who struggle with the management of their child may seek an inappropriate mental health diagnostic justification in the child such as Attention Deficit Hyperactivity Disorder (ADHD) or Autism Spectrum Disorder (ASD). Material gain includes financial support for care of the child, improved housing, holidays, assisted mobility and preferential car parking. (ii) The second motivation is based on the parent’s erroneous beliefs, extreme concern and anxiety about their child’s health (e.g. nutrition, allergies, treatments). This can include a mistaken belief that their child needs additional support at school and an Education Health and Care Plan (EHCP). The parent may be misinterpreting or misconstruing aspects of their child’s presentation and behaviour. In pursuit of an explanation, and increasingly aided by the internet, the parent develops a belief about what is wrong with their child. In contrast to typical parental concern, the parent exhibiting such behaviour cannot be reassured by health professionals or negative investigations. More rarely, parents may develop fixed or delusional psychotic beliefs about their child’s state of health. The parent’s need here is to have their beliefs confirmed and acted upon, but to the detriment of the child. C. Fact finding 1. The standard of proof is the simple balance of probabilities. The burden of proof rests on the party seeking the finding. 2. The court is respectfully referred to the guidance of the House of Lords in the case of Re B[2008] UKHL 35 and the oft-cited dicta of Baroness Hale as to fact finding and the binary principle: “31. … In this country we do not require documentary proof. We rely heavily on oral evidence, especially from those who were present when the alleged events took place. Day after day, up and down the country, on issues large and small, judges are making up their minds whom to believe. They are guided by many things, including the inherent probabilities, any contemporaneous documentation or records, any circumstantial evidence tending to support one account rather than the other, and their overall impression of the characters and motivations of the witnesses. The task is a difficult one. It must be performed without prejudice and preconceived ideas. But it is the task which we are paid to perform to the best of our ability. 32. In our legal system, if a judge finds it more likely than not that something did take place, then it is treated as having taken place. If he finds it more likely than not that it did not take place, then it is treated as not having taken place. He is not allowed to sit on the fence. He has to find for one side or the other. Sometimes the burden of proof will come to his rescue: the party with the burden of showing that something took place will not have satisfied him that it did. But generally speaking a judge is able to make up his mind where the truth lies without needing to rely upon the burden of proof.” 3. Findings of fact must be based on evidence. As Munby LJ, as he then was, observed in Re A(A Child) (Fact-finding hearing: Speculation)[2011] EWCA Civ 12 : "It is an elementary proposition that findings of fact must be based on evidence, including inferences that can properly be drawn from the evidence and not on suspicion or speculation." 4. As Dame Elizabeth Butler-Sloss P observed in Re T[2004] EWCA Civ 558 ,[2004] 2 FLR 838 at 33: "Evidence cannot be evaluated and assessed in separate compartments. A judge in these difficult cases must have regard to the relevance of each piece of evidence to other evidence and to exercise an overview of the totality of the evidence in order to come to the conclusion whether the case put forward by the local authority has been made out to the appropriate standard of proof." 5. The task of the court is to decide on the evidence before it. It can depart from the view of expert evidence provided sound reasons are given for doing so Re B (Care: Expert Witnesses)[1996] 1 FLR 667 ; M-W (A Child)[2010] EWCA Civ 12 . 6. The court should form an assessment of the credibility and reliability of the parents and any other carers. The court is likely to place considerable weight on the evidence and the impression it forms of them [per Baker J in Re JS[2012] EWHC 1370 ]. 7. When assessing the credibility of the parents and other family witnesses, the court must take account of the dictum of Mostyn J in Lancs CC v R & W[2013] EWHC 3064 at para 8(xi): “The assessment of credibility generally involves wider problems than mere 'demeanour' which is mostly concerned with whether the witness appears to be telling the truth as he now believes it to be. With every day that passes the memory becomes fainter and the imagination becomes more active. The human capacity for honestly believing something which bears no relation to what actually happened is unlimited. Therefore, contemporary documents are always of the utmost importance: Onassis and Calogeropoulos v Vergottis[1968] 2 Lloyd's Rep 403 , per Lord Pearce; A County Council v M and F[2011] EWHC 1804 (Fam) [2012] 2 FLR 939 at paras [29] and [30].” ‘Lucas’ Directions 8. Given that the truthfulness or otherwise of the witnesses in this case may be an issue, the Court may be assisted by the following excerpt from Re M (Children)[2013] EWCA Civ 388 , in which the applicability of the Lucas direction to family proceedings was highlighted by Ryder LJ: “7…. A Lucas direction is a criminal direction derived originally from a case on corroboration, R v Lucas[1981] QB 720 . It is used to alert a fact-finding tribunal, that is a jury in a criminal trial, to the fact that a lie told by a defendant does not of itself necessarily indicate guilt because the defendant may have some other reason for lying; that is, he may lie for innocent reasons. A witness may lie because she lacks credibility, or because she has an innocent motive for lying. If she lies about the key fact in issue, that is one thing; if she lies about collateral facts, that may be quite another. A judge of fact may not be able to separate out every fine distinction, but may nevertheless conclude that an allegation is proved, despite the fact that the witness has lied about other matters. 8. This is often simplified in the circumstances of emotionally-charged allegations remembered through the fog of distress and relationship breakdown as a core of truth surrounded by sometimes exaggerated and sometimes badly recollected or hazy memory. There may also be an overlay of deliberate untruth arising out of the anger and distress of the breakdown and/or the nature of the application before the court, and I remind myself this was a strongly disputed application. It is also too frequently the case that a Family Judge is faced with internally inconsistent or even untruthful witnesses who are locked in a battle in which their energies and antagonism have sadly come to be focused on who should look after the children or have contact with them.” 9. The court is also referred to the dicta of Macur LJ in A, B and C (Children)[2021] EWCA Civ 451 at paragraphs 57 and 58: “ 57. To be clear, and as I indicate above, a ‘Lucas direction’ will not be called for in every family case in which a party or intervenor is challenging the factual case alleged against them and, in my opinion, should not be included in the judgment as a tick box exercise. If the issue for the tribunal to decide is whether to believe A or B on the central issue/s, and the evidence is clearly one way then there will be no need to address credibility in general. However, if the tribunal looks to find support for their view, it must caution itself against treating what it finds to be an established propensity to dishonesty as determinative of guilt for the reasons the Recorder gave in [40]. Conversely, an established propensity to honesty will not always equate with the witness’s reliability of recall on a particular issue. 58. That a tribunal’s Lucas self-direction is formulaic, and incomplete is unlikely to determine an appeal, but the danger lies in its potential to distract from the proper application of its principles. In these circumstances, I venture to suggest that it would be good practice when the tribunal is invited to proceed on the basis , or itself determines, that such a direction is called for, to seek Counsel’s submissions to identify: (i) the deliberate lie(s) upon which they seek to rely; (ii) the significant issue to which it/they relate(s), and (iii) on what basis it can be determined that the only explanation for the lie(s) is guilt. The principles of the direction will remain the same, but they must be tailored to the facts and circumstances of the witness before the court”. 10. In Re Y (A Child) EWCA Civ 1337, Macur LJ said, at Paragraph 7(4): “… I consider the case appears to have been hijacked by the issue of the mother's dishonesty. Much of the local authority's evidence is devoted to it. The Children's Guardian adopts much the same perspective. It cannot be the sole issue in a case devoid of context. There was very little attention given to context in this case. No analysis appears to have been made by any of the professionals as to why the mother's particular lies created the likelihood of significant harm to these children and what weight should reasonably be afforded to the fact of her deceit in the overall balance.”
“If, as this Court observed in Re S (Re S (A Minor) (Independent Representation) (1993)2 FLR 437, the level of understanding has to be assessed relatively to the issue in the proceedings, Z’s understanding of the issues surrounding the proposal that he be removed from the family home may be materially different to his understanding of the issues relating to contact with his mother”
“State parties shall ensure effective access to justice for persons with disabilities on an equal basis with others, in order to facilitate their effective role as direct and indirect participants, including as witnesses, in all legal proceedings, including at investigative and other preliminary stages”
“... it is important to remember: i) that the roles of the court and the expert are distinct, and ii) it is the court that is in the position to weigh up the expert evidence and gives its findings on the other evidence. The judge must always remember that he or she is the person who makes the final decision.” 14. The judge is the decision-maker, and the expert is not. There are a variety of cases in which expert evidence has been rejected upon the basis that the Court believed the evidence of the parents. Perhaps the most well-known of these is the decision of Charles J in Lancashire v D & E[2010] 2 FLR 196 . However, similar observations can be seen by Mostyn J in Lancashire v R[2013] EWHC 3064 (Fam) and Baker J in Devon County Council v EB[2013] EWHC 968 (Fam) . 15. When considering a multidisciplinary analysis conducted by a group of medical specialists, the Court must be careful to ensure that each expert keeps within the bounds of their own expertise and defers where appropriate to the expertise of others: Re A [2014]. 16. The evidence of an expert is not held in any special position and there is no presumption of belief in an expert no matter how distinguished they may be. It is the role of the expert to advise but the decision is that of the judge based on the evidence. The expert is part of the wider canvas of evidence which is to be weighed by the judge against the other evidence. A judge cannot substitute his own views for the views of the experts without some evidence to support what he concludes. It is necessary for a Judge to give reasons disagreeing with the experts’ conclusions or recommendations: Re B (Care: expert Witnesses)[1996] 1 FLR 667 and Re D (A Child)[2011] 1 FLR 447 . 17. As observed by Hedley J in Re R (Care Proceedings: Causation)[2011] EWHC 1715 Fam: "There has to be factored into every case which concerns a disputed aetiology giving rise to significant harm a consideration as to whether the cause is unknown. That affects neither the burden nor the standard of proof. It is simply a factor to be taken into account in deciding whether the causation advanced by the one shouldering the burden of proof is established on the balance of probabilities." 18. It is important for the Court always to have in mind that there are cases where the experts get it wrong. Of course there are classic formulations of this in for example the case of Cannings and the object lesson as to the effects of changing medical orthodoxy in which Lord Justice Judge (as he then was) said: "What may be unexplained today may be perfectly well understood tomorrow. Until then, any tendency to dogmatise should be met with an answering challenge." Similarly, as observed by Dame Elizabeth Butler-Sloss P in Re U, Re B[2004] EWCA Civ 567 : “The judge in care proceedings must never forget that today's medical certainty may be discarded by the next generation of experts or that scientific research will throw light into corners that are at present dark.” 19. In R v Henderson [22] EWCA Crim. 126, in particular the words of Moses LJ should always be borne in mind when a judge is considering whether any particular allegation of non-accidental injury is made out: “There are few types of case which arouse greater anxiety and controversy than those in which it is alleged that a baby has died as a result of being shaken. It is of note that when the Attorney General undertook a review of 297 cases over a 10 year period following the case of R v Cannings [2004] 2 Criminal Appeal Reports 63, 97 were cases of what is known as “shaken baby syndrome”
“There has to be factored into every case which concerns a disputed aetiology giving rise to significant harm, a consideration as to whether the cause is unknown. That affects neither the burden nor the standard of proof. It is simply a factor to be taken into account in deciding whether the causation advanced by the one shouldering the burden of proof is established on the balance of probabilities”
“What about the Court's approach, in the light of all that, to the issue of significant harm? In order to understand this concept and the range of harm that it's intended to encompass, it is right to begin with issues of policy. Basically it is the tradition of the United Kingdom, recognised in law, that children are best brought up within natural families. Lord Templeman, in Re: KD (a minor ward) (termination of access)[1988] 1 AC 806 , at page 812 said this: "The best person to bring up a child is the natural parent. It matters not whether the parent is wise or foolish, rich or poor, educated or illiterate, provided the child's moral and physical health are not in danger. Public authorities cannot improve on nature." There are those who may regard that last sentence as controversial but undoubtedly it represents the present state of the law in determining the starting point. It follows inexorably from that, that society must be willing to tolerate very diverse standards of parenting, including the eccentric, the barely adequate and the inconsistent. It follows too that children will inevitably have both very different experiences of parenting and very unequal consequences flowing from it. It means that some children will experience disadvantage and harm, whilst others flourish in atmospheres of loving security and emotional stability. These are the consequences of our fallible humanity and it is not the provenance of the State to spare children all the consequences of defective parenting. In any event, it simply could not be done.” 24. Hayden J, in Re W (A Child)[2021] EWHC 2844 (Fam) , considered the approach to assessing the threshold criteria and, at Paragraph 19, held that: “It is important to emphasise that the provision “not being what it would be reasonable to expect a parent to give” is not to be regarded as an abstract or hypothetical test but must be evaluated by reference to the circumstances the parent is confronting i.e. what would it be reasonable to expect of a parent in these particular circumstances, recognising that in a challenging situation many of us may behave in a way which might not objectively be viewed as reasonable. The test is not to be construed in a vacuum nor applied judgementally by reference to some gold standard of parenting which few (if any) could achieve. On the contrary, it contemplates a range of behaviour, incorporating inevitable human frailty. The reasonableness of the care given requires to be evaluated strictly by reference to the particular circumstances and the individual child.”
“It is our opinion in CAMHS that M has made superb efforts to enable a balance happy home life. Her children have their own difficulties a mix or genetic and current circumstances so need network support but I feel M has appropriately attended to her 6 children individual needs and wellbeing in terms of physical health, environment, stimulating toys and activities, exercise, education, celebrations, fun and when possible interaction with family and friends. This is an enormous achievement and with support M is following the beneficial CP plan and attending and cooperating with tasks in a way that enhances and strengthens her own skills and those of her children.”
“Hence, while I have not seen evidence that the mother meets diagnostic criteria for an Emotionally Unstable Personality Disorder, I wonder about her sense of herself and the degree to which she has sought to conceal information from others. The concealment of information is often associated with a diagnosis of Factitious Disorder imposed on Another. If a diagnosis of Factitious Disorder imposed on Another were confirmed that the mother’s poor sense of self might form part of the formulation for her wishing to portray A as being unwell, a possible motivator being a wish to give herself a better sense of purpose and/or agency.”
“My formulation is that the mother’s underlying personality difficulties have become more obvious in the last year or two, likely because of the stress of these proceedings and the stress of being separated from two of her children – the mental state that I observed when I interviewed her on this occasion was more disturbed than I had seen in 2010 and 2020, particularly the depth of her hostility towards social care professionals – but are likely enduring difficulties.”
“The children have been exposed to the mother’s dysregulated behaviour and distress”
“Mum went on to say [A] was mute and does not communicate with anyone. I asked mum how long he had been mute. Mum replied he had never spoken. I asked her again to clarify saying my colleagues had previously seen him and he spoke with them. Mum denied this would ever have happened.”
“I recall having a meeting with his mother who believed that A was being treated unfairly and was a victim in school, so in this meeting I thought it would be a great opportunity to allow A to speak and let mum know this is not the case. mother at this time was catering to her other 3 children which took up most of her attention and would very frequently make it extremely difficult to have a discussion, especially for A. Initially A started off silent and very slow but before he could make a good start his mother started prompting him to reply in a not so calm/patient manner, and when she did not get an immediate response, she would become more panicky and prompt him again or ask another question. Unclear to the mother she was making it very uncomfortable for A to voice anything which made him extremely upset and brought him to tears. At this point I decided to take A into another room to calm him down and not only did he calm down very quickly but he was able to communicate effectively. We spoke and he explained that he doesn’t get much time to explain because it is unusually very busy at home with his other siblings. I think took A back to the meeting room and explained to the mother that A would like to talk and that it would be best if he’s not rushed as he may take some time to get his words out. A was able to communicate and was more honest about his behaviour however mum was still adamant that something was still wrong.”
“[She] has always encouraged her children in their development. Any distorted view could be dealt with by providing the mother with parenting assistance and ensuring she has understood the children’s needs/ diagnoses. The mother has responded to this well in the past with the help of a family support worker. These proceedings have also taken place during the Covid-19 pandemic when the children were stuck at home. They have since started at school and nursery, which will act as a safeguarding factor while also helping in their development.”
“FII is a clinical situation in which a child is, or is very likely to be, harmed due to parent(s’) behaviour and action, carried out in order to convince doctors that the child’s state of physical and/or mental health or neurodevelopment is impaired (or more impaired than is actually the case). FII results in emotional and physical abuse and neglect including iatrogenic harm.”
“I. Physical examination and results of investigations don’t explain the symptoms: (neurology visit April 2018 and October 2019, paediatrician November 2018). II. The child’s daily life and activity are limited beyond what is expected: not walking, not attending school for nearly two years and not enjoying a normal childhood activities. III. Objective evidence of fabrication: (GP December 2018, paediatrician May 2019) (July 2019) psychologist (March 2020) IV. Had frequent invasive investigations and treatments. V. He missed some education and social isolation. Limitation of daily life. VI. The adoption of the sick role (Paediatrician November 2018) VII. Characterisation as being disabled special educational provision and receiving DLA. VIII. He became anxious and confused about his health.”
“I have very significant concerns regarding the accuracy of information provided by the mother, and hence her honesty and engagement both with this assessment and those conducted by others. These concerns, in my experience, were significantly greater than generally encountered in this context and cast doubt on the extent to which it is possible to gain accurate information regarding the mother. As a consequence, I would suggest that it is essential that professionals ensure that they do not rely on information provided by the mother, but that corroborative/independent information is also sought. “There are many examples of this; the results of psychometric assessment strongly indicate that the mother did not approach this assessment in an open and honest manner; rather, to a degree rarely seen in this context, she was highly defensive, secretive, reluctant to admit to common, but socially undesirable, weaknesses and feelings, and attempted to create a favourable impression of herself. The mother’s responses were inconsistent during this assessment in relation to whether or not she had any sexual/relationship experiences before meeting X; she indicated both that she did and that she did not. She also stated at one point that she did not know the reason he was arrested, but went on to demonstrate that in fact, she is aware of this.”