“Some people might think that it is a life limited in quality as well as quantity, and, in some ways it is, but in so many others, it is not; in many ways, I have what others do not, and finally, as I have said – it is mine. Many, many aspects of it are aspects that I have chosen for myself. That is what I mean when I say that it is a decision made by me as opposed to my illness. I don’t feel that to ask anything else of me is fair. But it is more than that. I believe in fact that to ask anything else of me would make me worse: both physically and mentally. It would be like being punished twice: once by having the illness, and once in an attempt to ‘treat’ it (whatever that means).”
“The temptation to base a judgment of a person’s capacity upon whether they seem to have made a good or bad decision, and in particular on whether they have accepted or rejected medical advice, is absolutely to be avoided. That would be to put the cart before the horse or, expressed another way, to allow the tail of welfare to wag the dog of capacity. Any tendency in this direction risks infringing the rights of that group of persons who, though vulnerable, are capable of making their own decisions. Many who suffer from mental illness are well able to make decisions about their medical treatment, and it is important not to make unjustified assumptions to the contrary.”
“It does not matter whether the impairment or disturbance in the functioning of the mind or brain is permanent or temporary (Mental Capacity Act 2005, s. 2(2) ). It is important to note that the question for the court is not whether the person’s ability to take the decision is impaired by the impairment of, or disturbance in the functioning of, the mind or brain but rather whether the person is rendered unable to make the decision by reason thereof (see Re SB (A Patient: Capacity to Consent to Termination)[2013] EWHC 1417 (COP) at [38]).”
“… a person cannot be considered to be unable to use and weigh information simply on the basis that he or she has applied his or her own values or outlook to that information in making the decision in question and chosen to attach no weight to that information in the decision making process.”
“In assessing the question of capacity, the court must consider all the relevant evidence. Clearly, the opinion of an independent-instructed expert will be likely to be of very considerable importance, but in many cases the evidence of other clinicians and professionals who have experience of treating and working with P will be just as important and in some cases more important. In assessing that evidence, the court must be aware of the difficulties which may arise as a result of the close professional relationship between the clinicians treating, and the key professionals working with, P. ….in cases of vulnerable adults, there is a risk that all professionals involved with treating and helping that person – including, of course, a judge in the Court of Protection – may feel drawn towards an outcome that is more protective of the adult and thus, in certain circumstances, fail to carry out an assessment of capacity that is detached and objective.”
“You have an impairment of mind, anorexia nervosa. While you understand information given to you regarding the risk to your life and the severity of your illness, you do not believe this information. Your fear of weight gain affects your ability to weigh up information, dismissing all information that would points [sic] towards the severity of your illness and in favour of weight restoration. It is my opinion that you do not have capacity to make decisions about your treatment at this time.”
“I have concern that [AB]’s anorexia nervosa may interfere with her ability to make a reasoned decision regarding the non-acceptance of life-saving in-patient treatment. She clearly understands the gravity of her situation, is accepting and believing of this and is able to communicate her wishes to us. However her reasoning around the aversive nature of being forced to do something that she does not wish to do i.e. have an NG feeding tube, is likely to be partly or wholly as a result of not being able to allow herself to have an increase in nutrition which is a direct consequence of her mental disorder.”
“[AB] said her illness is very powerful over her like a bully. Bullying her constantly in everything she does. [She] is ‘still in there’ somewhere but the Anorexia is stronger.”
“I know that I do not have capacity about eating enough to gain weight. I do have mental capacity in knowing the risks and what I am doing to my body. I know the consequences of what could happen. I have full capacity in terms of getting my observations checked and that sort of thing. I engage with my Northamptonshire team every week. I have a very supportive team around me and I have my family. This is my decision to stay at home with my family. I will always carry on seeing my GP. I know about the consequences of death but I just cannot go through any more [hospital] admissions. Everyone decided at the best interests meeting in July this year that palliative care was better for me. I know my health will decline. It is just cruel to keep putting me through this [i.e. further hospital admissions for nasogastric tube feeding].”
“4. To say however simply that I have had 11 in-patient admissions doesn’t in and of itself convey what happened during those admissions. It couldn’t. I have been held down by my legs with a tube thrust forcefully and forcibly up my nose. I have had food inserted through a syringe so quickly and violently that I was sick. I have had my mobile phone removed from me so that I couldn’t call my friends or my family, and they couldn’t contact me. I have been restrained and force fed in front of other patients. I have been left covered in bruises and scratches. I have been thrown down on to a bed because I refused to sit in a chair. I have had my feet stamped on when being manhandled. I have been lied to, blackmailed, promised that something would happen, only then to be told that it won’t, and threatened. I have been searched on returning from leave, as have my parents. I have been helpless – and watched helplessly – as every aspect of my life, every aspect of my being, has been controlled by those with the power to do so. In turn, I have kicked and screamed until I’ve been hoarse. 5. I have tried in the past to ‘get better’, but never have. During each admission, the focus has been on me putting on weight, and I have. But I have been admitted, gained weight, been discharged, and lost weight. Circular or cyclical, there has never been an endpoint. What is different now is that I have identified for myself a path. I know what the end of that path is likely to be, but it is a path nonetheless, and a path of my choosing. 6. My illness is a part of me, but it is not all of me; it does not define me, and that is where I think [Dr B] is wrong. I do understand that my weight is dangerously low, and that the consequence of not eating enough to gain weight is death. I do not want to die, and I do understand what the illness is doing to me, and the consequences of continuing down the path that I am on. Similarly, though, I also understand what the physical risks, as set out by [Dr B] or forcibly feeding me now are, and I wonder in addition whether in fact the mental stress of being treated against my will would kill me. 7. When I was 13, I was picked on at school by children who would call me ugly, throw things at me, and say that I shouldn’t eat certain foods, as I would become fat. It was those same children who then picked on me when I lost too much weight. I couldn’t win. In a way, the illness is like those bullying voices. Ultimately, I know that again, I probably won’t ‘win’. 8. But the decision not to undergo further inpatient treatment is mine. The illness is a part of me, yes. It is a voice, yes. It is a bullying and powerful voice, yes. But the voice making this particular decision is mine. It is a voice made hoarse by screaming, and tearful by the prospect of being forcibly treated against my will – knowing all the while both that any such treatment may cause my death in any event, and that, even were it not to, the likelihood of it ‘working’ is minute. I do not believe that anyone would agree to undergo further inpatient treatment knowing what it entails, and if told, as I have been, that the chances of ‘success’ – whatever that actually means – are so low.”
“5. This extreme aversion to adequate nutrition is part of her mental disorder of anorexia nervosa. She shows the overvalued ideas that are typical of this disorder – an over evaluation that being low weight is desirable and that being considered fat is so aversive it is to be avoided at all costs. The avoidance of this becomes extreme and out of all proportion to biological norms. 6. The weight that [AB] places on this desire to be thin and avoidance of being fat is therefore out of proportion to the situation and she places undue weight on the need to achieve this goal. In my opinion this undue weighting on the need to be thin above all else is what sets [AB’s] decision-making ability apart from that of someone who has capacity.”
‘Does AB have capacity to decide whether or not to be tube fed ?’ and not ‘Does AB have capacity to make decisions about treatment relating to anorexia nervosa ?’