“No, but I am the one who is consistently there and I know that she is having spasms. If she screams when she wakes up, she is having spasms and it goes on all day and all night.”
“… like, records aren't consistent. People write stuff and like the last few weeks people -- she has been screaming literally every single night for the last six weeks.”
“I'm there 24 hours a day. I spend all of my minutes of the day helping -- I am the second carer all the time, which I don't want to be. I'm the one who is there, constantly, and I am telling you that my daughter is in agony, and she has been, and she has been like that since she has been a newborn baby, and she needs some help. But it's not fair. There is nothing that they have tried, other than hydrotherapy, that can make a difference with her, and that's why I'm willing to take -- I don't want to go off for three hours on a Friday night when I have got three other children, not being able to make their tea, not being able to put them to bed. I'm willing to go all the way to Kendal to take her, even though I don't want to, because I know the benefit it has for her and I know that that night she is not in pain.”
“Yes, I would say that, yes, but that doesn't like – the other day she is still -- it's not continual screaming but probably half the week is when she wakes up in the morning and she is already starting and it tends to be worse of a weekend as well. That's the two days that she seems to be at her worst with the spasms.”
“Ayla often cries in pain with her muscle spasms during the night so I rub her legs and try to settle her but this can take a long time and I end up having to cuddle her for hours at a time.”
“The typical case of tetraplegia attracting an award in the mid-range of this bracket is appropriate for cases in which the injured person is not in physical pain, has full awareness of their disability, has an expectation of life of 25 years or more, has retained powers of speech, sight and hearing but needs help with bodily functions.”
“At the top end of the bracket will be cases where physical pain is present or where there is a significant effect on senses or ability to communicate. Such cases often involve significant brain damage where degree of insight is a relevant factor: see 3(A)(a). Lack of awareness/significantly reduced life expectancy will justify a below average award. Other factors bearing on the award include age, the extent of any residual movement, the degree of independence (if any) whether through the provision of aids/equipment or otherwise, the presence of respiratory issues and depression.”
“In cases at the top of this bracket the injured person will have a degree of insight. There may be some ability to follow basic commands, recovery of eye opening and return of sleep and waking patterns and postural reflex movement. There will be little, if any, evidence of meaningful response to environment, little or no language function, double incontinence and the need for full-time nursing care. The level of the award within the bracket will be affected by: i) The degree of insight ii) Life expectancy iii) The extent of physical limitations The top of the bracket will be appropriate only where there is significant effect on the senses and severe physical limitation …”
"I do not believe we would have moved back to the UK until I reached retirement age and possibly not even then if we were happy where we were."
“Medically, as a doctor, we can treat and cure some conditions but we obviously recognise that we can't treat and cure all of them and, sadly, Ayla has been so badly damaged by her original brain injury that there is very little that we can do in order to improve her outcome, but an important part of the medical management, simply on a humanitarian basis, is to reduce symptoms and one of her symptoms is clearly discomfort and that's evidenced by this incessant crying that she had and I think we heard that on the video and that is reduced quite markedly when she is put into the hydrotherapy pool. So as a method of symptom relief, that is why I'm recommending head-out-of-water immersion, not for the benefit of physiotherapy or improving outcome later on, it's simply to try and improve and reduce the uncomfortable nature of the spasms that she has.”
“in Ayla’s specific case it is self-evident that it does help her with her painful muscle spasms and helps to relieve her crying.”
“She is constantly in pain. Every now and again she might -- her arms might just relax a little bit but then she is back into spasm again. She is constantly uncomfortable and there is nothing we can do that we have tried can make any difference to Ayla in terms of pain relief, massage, exercise, like, stretching. The only thing that we found that makes any difference with it at all is hydrotherapy. ”
“there is nothing you can do to stop -- once she has started her spasms, there is nothing you can do to stop them other than literally putting her into hot water. There is nothing you can do, physically, to stop them from happening.”
“I don't want to have to travel that far every week but I know the benefits that it gives to Ayla and that -- … so I'm willing to take her there, knowing the benefit the water gives to her every week because that's the only thing that she gets any pleasure out of, one of the only things that she gets pleasure out of and it has so much effect on the pain relief for her, nothing else that I have tried has worked with her.”
“We tried to put her into a bath, that makes no difference because literally on the pictures that we have provided last night was a bath was full up to the rim and only literally her bum was in the water, her knee joints were out the water, her arms were out the water, the entire top half of her body was out the water and that's literally with the bath full to the rim.”
“I can see from the video and from some of the testimony that there is some benefit from periods of being immersed in water. I think that that cannot be denied but I'm not so sure that I can say that I know that's (a) the only way in which she can obtain relief, or is always the right thing for her, because we have heard that there are many circumstances in which it's not the right thing for her in terms of when she has got a chest infection or she is ill, and therefore I think I have to temper when I say strongly. I cannot advise strongly that she needs it on medical grounds.”
“The context and circumstances of those cases will not, in my view, be appropriate for a finding of a failure to mitigate loss to be made. The view expressed by the judge in Iqbal -to the effectthat it is not just to deprive parents of the incidental benefit of living rent free having regard to the uncompensated effects of the defendant’s negligence on them - can perhaps be regarded as another way of expressing the same conclusion.”
“I don't think it matters that much to Ayla, like, where she is. If she is at home with the right people that know how to deal with her, then she is happy, but then like, if we take her abroad with the right people that knows what to do with her, then she is happy.”