“He continues to suffer from poor organisational skills, poor auditory recall, excessive tiredness and distractability …”
“(1) For the purposes of this Act, a person lacks capacity in relation to a matter if at the material time he is unable to make a decision for himself in relation to the matter because of an impairment of, or a disturbance in the functioning of, the mind or brain. (2) It does not matter whether the impairment or disturbance is permanent or temporary…”
“For the purposes of section 2, a person is unable to make a decision for himself if he is unable— (a) to understand the information relevant to the decision, (b) to retain that information, (c) to use or weigh that information as part of the process of making the decision, or (d) to communicate his decision ... ”
“(2) A person must be assumed to have capacity unless it is established that he lacks capacity. (3) A person is not to be treated as unable to make a decision unless all practicable steps to help him to do so have been taken without success. (4) A person is not to be treated as unable to make a decision merely because he makes an unwise decision.”
“To have that capacity she requires first the insight and understanding of the fact that she has a problem in respect of which she needs advice … Secondly, having identified the problem, it will be necessary for her to seek an appropriate adviser and to instruct him with sufficient clarity to enable him to understand the problem and to advise her appropriately … Finally she needs sufficient mental capacity to understand and to make decisions based upon, or otherwise give effect to, such advice as she may receive.”
“The second area of concern has been demotivation. This is a feature of frontal lobe damage but it can also occur in depression and lassitude for other reasons. The extent of his executive dysfunction is a matter for the clinical neuro-psychologists involved in the case but there are hints from his behaviour that it is not severe. He has not engaged in aggressive or anti-social conduct except when under the influence of alcohol. He is able to engage appropriately with friends and pursue activities that are to his liking. As I understand it, he is popular within his social circle. His apathy does not extend to music or his work at PURE Radio. I would therefore agree with Dr Moss that his demotivation is selective and behavioural, even though there is probably an organic core.”
“10.4 I also note that there are consistent reports that Mr Loughlin has difficulty organising and motivating himself. The post accident school records indicate deterioration in performance although this was by no means severe. Nevertheless, bearing in mind the severity of his injury and the age at which it occurred, it is likely to have resulted in Mr Loughlin experiencing significant difficulties with his studies and integrating with his fellow pupils. It is likely that this change in ability level and difficulty with integration resulted in a significant mood disturbance. Further, it would also appear that Mr Loughlin did not understand the nature of his difficulties and did not fully understand what had happened to him. This would have added to his emotional difficulties. 10.5 There are also consistent reports of excessive fatigue and poor sleep. Fatigue is a common consequence of a head injury of this nature and severity. However, what is unusual in Mr Loughlin’s case is that he is not sleeping excessively and he reported to me that he rarely naps during the day. 10.6 It therefore may be the case that Mr Loughlin’s poor organisational skills and lack of initiation results from fatigue which is partly being caused by organic brain damage and poor sleep. I therefore believe that Mr Loughlin may benefit from referral to a specialist sleep disorders unit to see if there are any other treatments available for this difficulty. If his sleep disorder can be treated then it may well be the case that his organisational skills and motivation will improve to some degree. 10.7 I find it difficult to give a firm prognosis at this stage as rehabilitation only began approximately 1 year ago. Mr Loughlin appears to be engaging in the rehabilitation process at least reasonably well although, to my mind, the goals and objectives of rehabilitation are not clear. I think it would be useful to review treatment plans. 10.8 In order to assist the Court at this stage my tentative opinion is that Mr Loughlin will always require some degree of input from a Case Manager and Support Workers. 10.9 I believe that Mr Loughlin will be able to work at least on a part time basis in routine undemanding jobs. Had it not been for the accident it would appear that he would have had the potential and motivation to obtain a degree and pursue a professional career. 10.10 I believe that Mr Loughlin realises when he needs to seek advice and from whom to seek it. I think he has sufficient memory abilities in order to retain information he needs to convey to his chosen adviser and retain any advice given. I believe that, if given time, he would be able to weigh information adequately and reach a decision which he is able to convey to his chosen adviser. I therefore believe that Mr Loughlin has capacity to litigate and mange his financial affairs.”
“5.2 In my opinion the rehabilitation team needs to be much more proactive with regard to finding activities for Mr Loughlin to engage in, particularly in the mornings, since it would seem that he has little to get up for. It is therefore unsurprising that he does not get up until late and stays out late into the night/early hours of the morning. In my opinion, this is a common occurrence in people of this age with no regular employment. Presumably, Mr Loughlin was capable of getting up on time in the past since he attended school regularly and attained A levels. 5.3 It would appear that Mr Lowe, Occupational Therapist with Northern Case Management, has supplied Mr Loughlin with a list of websites and library addresses. In my opinion, there needs to be greater pressure exerted on Mr Loughlin to persuade him to engage in these activities, and ways found to motivate him. 5.4 At the time of my assessment Mr Loughlin informed me that he had planned to go to university but rehabilitation began and therefore his further education was postponed, although his offer of a university place was still open. It is not clear whether this is still the case. Perhaps this is something that could be explored. 5.3 The letter from an unknown author at the Department of Clinical & Health Psychology (whom I believe to be Dr Brown, Clinical Psychologist) would suggest that Mr Loughlin himself is not entirely convinced that the accident has caused the change in personality mentioned by various people and that some of his difficulties are likely to be emotional in origin, particularly in view of his childhood abuse. 5.4 I am not at all convinced that Mr Loughlin requires care at night. It would appear that when care is provided Mr Loughlin still does as he pleases and at times uses night care staff as a taxi service.”
“10.3 The results from this neuropsychological assessment do not reveal any gross cognitive impairments, but bearing in mind the severity of the injury it is likely that there has been some general cognitive blunting and mental slowing. 10.4 I note that there are consistent reports that Mr Loughlin has difficulties organising and motivating himself. There are also consistent reports of excessive fatigue and poor sleep. Fatigue is a very common consequence of a head injury of this nature and severity. In my initial report I raised the possibility that some of his apparent organisational difficulties may be secondary to poor sleep. 10.5 Mr Loughlin has been in receipt of a rehabilitation programme for several years involving, at least at times, 24 hour care. He appears to have made little, if any, progress and it is not clear what this programme has achieved. 10.6 I note that from approximately February 2012 a more rigorous programme was introduced with clearer goals and targets, with detailed guidelines for the support workers as to how these may be achieved. In my opinion, this is the sort of programme that should have been in place from the beginning. As can be seen from the review of documentation above this programme was remarkably successful in a short period of time. Indeed, I have rarely seen anyone respond so well and so rapidly to such a programme. One can only speculate as to how much progress Mr Loughlin would have made if an appropriate rehabilitation programme had been instigated from the outset. 10.7 I also note that when Mr Loughlin was sleeping at more appropriate times he seems to have been more engaged and compliant with other activities such as personal hygiene and domestic tasks. There also seems to have been an improvement in his general mood state. In my opinion, this indicates that Mr Loughlin’s problems are primarily due to motivation rather than acquired brain damage. If these problems were due primarily to brain damage I would not expect there to have been such a rapid response to the rehabilitation programme. The success of this programme also suggests that Mr Loughlin would respond to a broader and more targeted rehabilitation programme. 10.8 I was informed that when support was withdrawn on Friday and Saturday nights Mr Loughlin’s sleep pattern deteriorated. It may be the case that support was withdrawn too early but equally it is not uncommon for young men of this age to have late nights at the weekend. Mr Loughlin himself notes that a significant improvement in his mood and general wellbeing following the introduction of this programme. If use of the internet after midnight is still considered to be a potential problem if night support is withdrawn then, I understand, it is possible to set up the router to block internet access at certain times. 10.9 In my opinion, if Mr Loughlin continues to comply with the routine set up then the likely outcome of this is that Mr Loughlin will develop his own routines and strategies and eventually internalise the structure of programme. This in turn will result in reduced need for support worker input. Currently I do not see the need for a support worker to be present once Mr Loughlin retires to bed until he is awoken the next morning, I can see no reports of any adverse nocturnal events. Further, it would seem that on several nights a week Mr Loughlin is out socializing with friends while his support worker remains at his home. It would also appear that for several hours a day Mr Loughlin is not in the company of his support worker. I therefore do not see the need for 24 hour support worker input. 10.10 I believe that if Mr Loughlin continues to comply with an ongoing structured and targeted programme his stamina levels will increase. On the balance of probability, I believe that Mr Loughlin will be capable of at least part time low level employment if something can be found that interests him. 10.11 I believe that Mr Loughlin realises when he needs to seek advice and from whom to seek such advice. He has sufficient memory and linguistic abilities to convey the nature of his dilemma to his chosen advisor and to understand and retain any advice given. I believe that, if fully supported, he has the abilities to adequately weigh any information provided and reach a decision. He clearly has the abilities to communicate his decision. I therefore believe that, when fully supported, Mr Loughlin has capacity to litigate and manage his financial affairs.”
“I remain of the view that Mr Loughlin has capacity to manage his financial affairs and to litigate. There are references to Mr Loughlin having insight into his vulnerability and taking steps to reduce this. I would agree with comments made that Mr Loughlin may be vulnerable at times of fatigue. However, in many situations this can be compensated for by having formal legal and financial meetings arranged at a time of day when Mr Loughlin is relatively rested and for relatively short periods of time. He could be prevented from impulsive spending by less restrictive means than being under the Court of Protection, such as having money in an account that cannot be readily accessed.”
“8.6 Mr Loughlin continues to perform quite well on tests of executive function, while his day to day difficulties strongly indicate substantial impairments in his ability to structure and organise activities by and for himself. This is not an unusual finding in high IQ adults, who are able to perform well where an external structure is provided, but have great difficulty in providing such a structure for themselves. The nature of neuropsychological testing makes it almost inevitable that an external structure will be provided for the undertaking of tasks, including those tasks considered to fall under the rubric of executive function. 8.7 Mr Loughlin continues to receive a substantial package of support, which, with the exception of Friday and Saturday nights and Sunday morning, covers the whole 24 hour period. A range of opinion has been expressed on the need for, suitability, and appropriateness of such an extensive provision. Concerns have been raised among others, by Dr Moss and me in our joint statement that the support package lacked focus and goals, tended to provide services to, rather than support for, Mr Loughlin, and risked fostering dependency. 8.8 In my opinion, these concerns have been substantially and satisfactorily addressed by the rehabilitation team. There is now more structure and goal focus in the team’s approach; the sleep programme and fatigue monitoring have helped in the development in a realistic but extended range of activities, and the involvement of the occupational psychologist has also supported this. The sleep programme was implemented in February 2012; the formal eight-week is now completed, but the implementation of sleep hygiene measures, outdoor activities, and fatigue monitoring continues. With some lapses, such as those caused by his holiday, I understand Mr Loughlin’s adherence to the programme remains good so long as he is prompted to do the necessary things. When support is not there at weekends, he may stay up or oversleep and as a consequence be excessively tired on a Monday. 8.9 I note that the care experts agree that a period of intensive rehabilitation is needed and also that they have stated that it is “extremely difficult” to predict the longer term needs for support at this point. I agree that it is extremely difficult. At present, Mr Loughlin appears to respond well to prompts to carry out sleep hygiene measures, and he is also more responsive to prompts to carry out domestic tasks or work-related activities than he was at my previous assessment. However, he still relies on externally given prompts, and does not appear to generate them for himself, and certainly not reliably.”
“9.1 Mr Loughlin has made a good recovery of intellectual function following the impairments sustained as a consequence of his severe head injury in the accident of28 October 2002 . However, very significant cognitive impairments of concentration, working memory, information processing and executive function remain. Mr Loughlin requires prompting, support and structure for everyday activities, without which his lifestyle tends to become chaotic, risky and unproductive. Developments within the rehabilitation team have enabled the rehabilitation to become more structured and goal focused since the last assessment, with benefits to Mr Loughlin’s sleeping patterns, structure and range of activities, and to his awareness of the need of structure and strategies to manage his cognitive problems and fatigue. 9.2 Mr Loughlin will require continued support and input from occupational psychology, clinical psychology and counselling. It is difficult to predict his ultimate support and therapy needs, but a further period of intensive rehabilitation needs to be followed by a period of experimental reduction of support, to establish more clearly which elements of support need to be maintained to ensure maintenance of a structured lifestyle. 9.3 On the balance of probabilities Mr Loughlin will not be able to obtain and sustain employment in the open market, though he may possibly become capable of limited part time work in the future. Fatigue and difficulties structuring his own work are likely to be the main barriers to successful employment. Mr Loughlin currently lacks the capacity to conduct litigation or to manage his property and affairs. This situation is likely to continue indefinitely.”
“… It might be a situation where he has a girlfriend who says to him, “Look, we could get rid of all your support workers and people that cost you money or you don’t like and we can go travelling”
“1. It is now ten years since Mr Loughlin suffered a severe traumatic brain injury. He continues to have difficulties with his cognitive behavioural and emotional domains. 2. His cognitive difficulties are consistent with a dysexecutive syndrome manifest by poor organisation and planning and difficulty sustaining attention. This will be consistent with a frontal lobe brain injury. 3. His behaviour difficulties are consistent with Organic Personality Disorder manifest as impulsivity, disinhibition, poor judgment and lack of motivation. This would be consistent with frontal lobe brain injury. 4. His emotional difficulties are consistent with either an Organic Personality Disorder or an Adjustment Disorder secondary to the affects on his lifestyle from his traumatic brain injury. Mr Loughlin has sufficient insight to recognise the impact of his disabilities and his quality of life from which he suffers a reduction in mood. 5. It is evident that despite intensive brain injury rehabilitation Mr Loughlin had not been able to achieve independence and continues to depend on support to organise, motivate, monitor and adjust his daily living activities. Mr Loughlin has made some gains in his level of daily function but quickly decompensates when support is removed. This would be consistent with the affects of frontal lobe brain damage. In my opinion there is evidence to justify the need for support during waking hours seven days a week. The need for night time support could be adjusted over time but previous experience has shown that Mr Loughlin can be taken advantage of and would need to be protected from night callers. I appreciate Mr Loughlin’s desire for some freedom at weekends but given the need for a strict daily routine as a therapeutic optimum I would not recommend varying this routine for any day of the week. Mr Loughlin in my opinion does not have capacity to manage his financial affairs as he lacks judgement and can act impulsively without appreciating the consequences. He is in my opinion a protected party within the meaning of theMental Capacity Act 2005 . In my opinion I do not believe Mr Loughlin is employable in the open market. I do believe he would benefit from vocational activities such as charity work to enhance his self esteem.”
“It is recognised that injuries at an earlier age have more profound consequences. The reason for that is because the frontal lobes are very important in acquiring social rules of engagement and subtleties and sophistications of interpersonal relationships. And, therefore, if an individual suffers an injury to the part of the brain, in crude terms the organ that is so important for acquiring this skill, they’re at a significant disadvantage from an adult who suffers the injury having already acquired those skills, because they have at least had the experience of using those skills which they have lost; whereas the younger individual has never acquired them in the first place. I think the particular difficulty he has in weighing up the consequences of his decision. From reading Mr Loughlin’s behaviour, he appears to be very much in the present. He operates in the present tense. And he doesn’t seem to be able to anticipate the consequences of his actions either at a behavioural or an emotional level. Therefore I think that he’s very much disadvantaged in terms of his decision-making processes as to what the short, medium or, certainly, long term consequences of his decision would be. The other problem is – and it goes back to the emotional aspect – the way the Mental Capacity Act is constructed gives the impression that the cognitive or intellectual side of things is the most important, in terms of language, memory and rationalising your decision. But, in fact, emotion plays a very powerful part in our decision-making. And my impression is that Mr Loughlin’s emotional understanding of the world and people has been impaired. For example, he has been described as staring at people inadvertently. And he got his jaw broken in town. We don’t know the exact details but the suggestion is that he wasn’t quite reading the emotional cues of his potential assailant. And that with his girlfriends there also appears to be – observed from his carers – a difficulty in understanding them emotionally and predicting the way that the relationship is going. I think at an emotional level as well he would be impaired in terms of being able to anticipate the consequence of his actions. One of the problems in the real world – in what might be called the laboratory setting or the consulting rooms, it is very much an artificial environment. Therefore if you ask an individual how they would behave, for example, were they to receive money and they tell you that they would invest it in a house, you really have to take that into context of the rest of the observed behaviours in the real world, because it is very well recognised that folk with frontal lobe brain injuries say one thing and do another. And its the unpredictability of the real world that renders them vulnerable. So with all the best intentions he may have wished to do something, but in certain circumstances, given unpredictable conditions, he could easily do the opposite. And that’s my concern, that he would be vulnerable in an unpredicted and unmanaged environment. Well, taking the bigger picture into account – and we’ve talked about the emotional and the cognitive side of things and the behaviour – I think taking the whole picture into account, I would have to fall on the side that he doesn’t have capacity. I think its finely balanced, but from the start I think I had – put it this way: I’ve seen finer balanced – in other words, I think that I was more comfortable in saying that he lacked capacity in this situation than I have been in others.”
“I’m struggling with that one, because my concern is that Kristopher – and, again, it’s the nature of the injury that he has to know when advice is appropriate – when it’s appropriate to seek advice. And my concern is that he may not know that it’s – that he needs that advice, because he needs the insight to know that. … That’s not the impression I get from the monthly records, particularly of Ms Gibson. The impression I get is that he’s a man who needs prompting and supervision; and that he doesn’t appear to know when he needs to know. In other words, that they seem to have to make that judgment for him and advise him in an unsolicited way.”
“The only thing I will say, as a practising case manager, 18-year olds are very difficult to get to engage. …I have huge experience of this group. I have a lot of people we still case manage now, they’re young adults, we’ve worked with them since children, over a 20 year span. And they can be a nightmare at 18. They’re sort of trying to push boundaries. They don’t want to accept. It can take us years. I do think it is very difficult, within the court system, sometimes that we try to put people at an age to go and live in their own accommodation or trial independent living, long before we would normally. And it is just one of the occupational hazards that we have that we get particularly asked to bring people. It is jolly difficult. It is very easy to say. I can write these reports. I can tell my case managers, “Why haven’t you done it?”
“Initially I had to do everything for him, get him up, dress him, brush his teeth, get him downstairs, get him to the toilet, help him to have a bath because one of his legs was pinned and plated. I had to take him to hospital appointments, and he was in a lot of pain. To make matters worse Kristopher was not sleeping and this impacted badly on him, and in turn me. It was a very difficult and long period of recuperation. Even when he progressed to crutches, he could not carry anything so I had to follow him with a drink or a sandwich and be on hand to help him.”
“It’s not a precise science. The sort of care he’s had isn’t helping him to get in and out of the bath or easily quantifiable. It has been support – it has been on call support that she was providing. And that’s why I’ve taken a view on it. And there is, in my experience, in this sort of injury no other way of doing it. You cannot precisely say it is an hour a day for prompting or whatever because you’re actually providing that support at different times of the day and night. So that’s really the view I’ve taken. Obviously it was very intense in the early stages with a lot of night care.”
“My observations and my experience tells me that there are kind of key indicators that I would look for in a client to indicate employability. My observations regarding Kris – and, I mean, I draw them from my observations of him in the work placement environment – if Kris isn’t able to attend a placement, does he phone to cancel the placement? No, he doesn’t. He doesn’t initiate that because he can’t initiate that. If he’s prompted to phone the placement to say he can’t come, sometimes he does it, sometimes he doesn’t. The times he doesn’t do it he has perhaps been asked when he’s eating breakfast, texting, and he doesn’t follow through with it. When he’s in the placement – I mean, one of the examples that when I was in placement I’ve observed Kris struggling with a variety of things. And you can tell from my report we implemented some compensatory management systems within the radio placement to help Kris cope. I guess over a six month period my observations have been that Kris is not independently using those systems. He needs to be reminded to use the systems. So the systems I’m talking about are if the placement provider gives him a new piece of information or asks him to do something, Kris has a tendency not to remember what he has been asked. So we needed a system of: how are you going to remember that information? He now is asked to record the information so he can refer back to it either in that session or in subsequent sessions. My last observation of Kris was that despite having those systems in place he’s not initiating the use of those systems. I needed to say, “How are you going to remember that information, Kris?” “Oh, we might write it down”. “What information do we need to write down in order to be able to refer back to it?”
“[In respect of his employment prospects] I think quite poor. The reason I say that is because the job that he did have was, to all intents and purposes, a supported environment. His boss seemed to be extraordinarily tolerant of him. And he didn’t seem to be able to, again, internalise, generalise or even empathise, at an emotional level, with what his boss was trying to do for him at the time. And although he was on a disciplinary and he had been cautioned for time keeping, it was noted that even when he would turn up late he would take the time to smoke outside the building before he even went in. And I think with that level of misunderstanding I find it very difficult to see that he would survive in a more competitive environment.”
“The section applies to an action for damages for personal injuries in which there is proved or admitted to be a chance that at some definite or indefinite time in the future the injured person … will develop some serious disease or suffer some serious deterioration in his physical or mental condition. ”