“That there was a failure by the Defendant to refer the Claimant for investigation of her symptoms on an urgent basis on18 January 2016 ; that if the referral had been made, the Claimant’s cancer would have been diagnosed at an earlier stage; that the Claimant would have been treated with less radiotherapy and that no chemotherapy would have been required; that the total laryngectomy and bilateral neck dissections and severe complications of the chemotherapy would have been avoided.”
“She requires on-going support with respiratory care. Particularly with laryngectomy stoma care. She needs suctioning of respiratory secretions by a skilled caregiver 8-12 times/day in order to minimise high risk of chest infection, pneumonia and hospital admissions. This is not a predictive task; hence Ms Cullen may require hourly suctioning of respiratory secretions.”
“Plug: tricky placement of plug due to small stoma, deep puncture and angled party wall that makes placement of plug tricky. SLT attempt x4 but not successful.”
“I have been informed that according to my records I am now described as “self changing”, which is fine however I am being assessed for other reasons and the term “self changing” is a very loose term and it somehow indicates that I change my valve without any help at all. As you are aware I rely quite heavily on my carers to help meet carry out successful valve changes. To be honest I am not sure I would be able to fully perform the change without their help (normally Anna). This is due to the difficulty I normally have is the position of my puncture is awkward, and sometimes I find it quite impossible to see, therefore I rely on help. Also I find it hard to insert gel caps without help. Think it would be a bit daunting to do this entirely on my own. Would it be possible to include in my records that although I am “self changing”
“Pt contacted SLT team to request that entry is placed in her medical notes regarding status as voice prosthesis self-changer. Wilma is able to self-change prosthesis following previous training with the SLT team. However in order to do this safely and effectively, it requires a carer to be present to support the change. The role of the carer within the change is to enable Wilma to self-change by assisting with tasks such as positioning of mirrors, providing a light source, visual confirmation of prosthesis placement in tract, visual confirmation of no-leak, and removal of the prosthesis tab. We consider it necessary for Wilma to complete her self-changes with a carer present to ensure it is safe and effective, and to avoid the need to attend the hospital for SLT led changes.”
“I am one of Wilma’s treating SLTs and have been treating her since 2022. The SLT team at the Royal London Hospital have been treating Wilma since her laryngectomy surgery in 2017. I have been asked to explain the terminology “self-changing”
“when the joint statements of the meetings of experts were served I was advised that the value of the case had changed and that I could no longer claim 24-hour care. I accepted the change in the experts’ views even though they were based on the misunderstanding of the term in the records of ‘self-changing’. I don’t think this is fair now.”
“I'm left with no choice. It's me that's restricted. It's me that feels she can't breathe and that's scary. The reason I have to go into it with the forceps is because the cough is not bringing it up, because it's so big it's just not removing it.”
“You see, the thing is, when they give you the tweezers, the tweezers are one long bit and they're blue and they're quite thick, so when you put the tweezers into my very small stoma you can't see anything else.”
“Q. One of the things that you told his Lordship and we have seen from your medical records, is you use forceps to go deep down to remove- A. Well, I don’t because I can’t do it.”
“A. Sorry. I am telling you that I can't clean them big secretions up in mythroat. It's scary. I get very laboured in my breathing, and it's very, very scary. It really is very, very scary. They won't come up. I can't get them up. It's the only way I can get them up, or we can get them up. And with a torch I can't see right down in because I have to put my head back. Anna has to pull the secretions out because they're below the valve.”
“From January 2017, the Claimant’s son became her full-time carer.”
“would not be able to do it without my lovely, dedicated carers you are all amazing”
“If, after producing a report, an expert’s view changes on any material matter, such change of view should be communicated to all the parties without delay, and when appropriate to the court.”
“An indemnity is claimed under the principle in Avon v Hooper in respect of monies and assistance provided by third parties who may (in respect of past or future expenditure) reclaim payment or otherwise charge the Claimant for the same. The Claimant reserves the right to amend the Schedule on receipt from any such third parties of details of the cost of such provision.”
“Denied. The case of Avon County Council v Hooper[1997] 1 WLR 1605 concerned charges being made underSection 17 of the Health and Social Services and Social Security Adjudications Act 1983 for services otherwise provided under other specified statutory provisions. The effective statutory services that applied in Avon have all since been repealed and withdrawn, and all that is left in the Act is limited to charges for services provided under paragraph 1 of Part II of Schedule 9 to that Act, namely the provision of meals and recreation for old people, which services do not arise in the present claim. The Claimant pleads no statutory basis or risk for the local authority recovering any payments made or otherwise making any other charges in due course, absent which statutory basis or risk, there is no basis for an indemnity. Further, in Avon, the indemnity arose by agreement, so Avon is not any authority for the Court having jurisdiction to impose such an indemnity, which jurisdiction it is denied that the Court has. Further, where the funding that the Claimant has managed to secure from the local authority is so vastly in excess of what she might have needed or might now need as a result of her laryngectomy and any negligence, so it is denied that the Defendant can be under any obligation to indemnify against any recovery by the local authority.”
“it goes… to the heart of the future care claim because the past and present care regimes are the foundation of the alleged future care regime.”
“When the COVID-19 pandemic began, my situation became unbearable: I was advised to shield, the risk of infection was very high and no one could come into my house. My son and I isolated and he became my full time carer again for several months.”
“But you have socialised over the years since 2017? You have been out to restaurants, have you not?”, to which she replied “For celebrations, birthdays, anniversaries, yes, yes I have.”
“I used to really enjoy cooking and would often cook for family functions. I am now limited in what ingredients I can use because spices and strongly aromatic foods make me cough”; and paragraph 50: “One of my passions was food and cooking. One of the things I really enjoyed was making a meal and having lots of people round. That doesn’t happen much now. I cannot enjoy food myself so much now, I have an altered sense of smell and things just don’t taste the same anymore.”