“Dear Doctor, The question has arisen as to whether your patient David Spencer is the unknown son of the late William B Anderson who I am the mother of. Since there is a history of colon cancer in the family, it is essential we know David’s parentage. The Manchester Centre for Genetic Medicine at the University Hospital have agreed to see David Spencer to establish one way or the other as they hold DNA samples on my son. That is, David would be tested to see if he is at risk of bowel cancer and clarify paternity. Under the NICE guidelines I am requesting that you refer David as soon as possible using the reference [number given]. The consultant genetic counsellor is [name, address and telephone number given]. Many thanks for your co-operation, Yours sincerely, V Anderson”
“Your brother provided the sample on the understanding that it would be used for genetic testing in respect of hereditary/genetic conditions in relation to himself and for other family members, specifically in relation to potential bowel cancer. As the DNA sample does not come under the jurisdiction of the Human Tissue Act because… it does not contain human cells, we have been advised that we can only release his sample if we receive written consent from both Mrs Anderson (as your brother’s next-of-kin) and from the putative son or on receipt of a court order. Otherwise, we will retain the DNA sample indefinitely, as is our usual practice.”
“…specimens…should not be retained longer than is necessary for the purpose for which they were collected.” (p30) (2) Consent and confidentiality in clinical genetic practice: Guidance on genetic testing and sharing genetic information: Joint Committee on Medical Genetics (Royal College of Physicians, Royal College of Pathologists and British Society for Human Genetics), 2nd ed., 2011 This Guidance emphasises the topics for discussion as part of the consent process (pp5-6) and the need for the scope of the original consent to be considered in relation to any future use of a sample (p8). (3) The retention and storage of pathological records and specimens: Royal College of Pathologists and the Institute of Biomedical Science, 5th ed., April 2015. In relation to DNA, this states at paragraph 140: “The need for retention of diagnostic specimens should be assessed at the time of sampling, and appropriate consent obtained; see The Joint Committee on Medical Genetics report Consent and Confidentiality in Clinical Genetic Practice: Guidance on genetic testing and sharing genetic information (2011). Once DNA/RNA has been legitimately extracted from the tissue, this material does not fall under the remit of the Human Tissue Act, because it no longer contains human cells; but ethical requirements impose a duty to apply similar restrictions to use and storage….”
"The whole scheme of the 1990 Act lays great emphasis upon consent. The new scientific techniques which have developed since the birth of the first IVF baby in 1978 open up the possibility of creating human life in ways and circumstances quite different from anything experienced before then. These possibilities bring with them huge practical and ethical difficulties. These have to be balanced against the strength and depth of the feelings of people who desperately long for the children which only these techniques can give them, as well as the natural desire of clinicians and scientists to use their skills to fulfil those wishes. Parliament has devised a legislative scheme and a statutory authority for regulating assisted reproduction in a way which tries to strike a fair balance between the various interests and concerns. Centres, the HFEA and the courts have to respect that scheme, however great their sympathy for the plight of particular individuals caught up in it."
“These obligations may involve the adoption of measures designed to secure respect for private life even in the sphere of the relations of individuals between themselves. The boundaries between the state’s positive and negative obligations under Art. 8 do not lend themselves to precise definition. The applicable principles are nonetheless similar. In determining whether or not such an obligation exists, regard must be had to the fair balance which has to be struck between the general interest and the interests of the individual; and in both contexts the State enjoys a certain margin of appreciation.”
“The fact that the [legislation] does not contain any specific rules on forensic genetic testing of deceased persons should not lead to the existing rules, according to which [in a paternity case] the court may decide to compel the parties to undergo genetic testing, being narrowly construed to mean that the existing legal basis does not cover testing of deceased persons… In these circumstances we consider that… if deemed necessary, the court may decide that forensic genetic tests should be carried out, even on a deceased party. In its assessment, however, having regard to the principle of proportionality, the court must balance the extent of such interference with the need to elucidate the particular case.”
“Were the proceedings taking place in the High Court for (e.g.) a declaration of parentage under theFamily Law Act 1986 or for relief under theInheritance Act 1975 and paternity was in issue the court could and would make an order for DNA samples to be tested (pursuant to its powers under the Family Law Reform Act and/orCPR 25.1 )." “I am satisfied that were the English Court concerned with determining the parentage of someone in Ms Goncharova’s position (in Inheritance Act proceedings or proceedings under theFamily Law Act 1986 ) and post-mortem samples were available in the circumstances that pertain here it would have no hesitation in ordering DNA testing of the samples for the reasons I have already given. It is not unlawful to carry out DNA testing in accordance with an order of the court.”
“Whatever the precise nature of the application, the court in civil proceedings has comprehensive powers under the CPR to order inspection of property, the taking of samples, the carrying out of experiments (seeCPR 25.1 ). The Family Law Reform Act also permits DNA testing.”
“I do not think that it is right to describe this jurisdiction as being ‘under RSC Ord. 15 r.16’. The jurisdiction is part of the inherent jurisdiction of the High Court, and the rule does no more than say that there is no procedural objection to an action being brought for a declaration …”
“The High Court's power to dismiss a pending action for want of prosecution is but an instance of a general power to control its own procedure so as to prevent its being used to achieve injustice. Such a power is inherent in its constitutional function as a court of justice. Every civilised system of government requires that the state should make available to all its citizens a means for the just and peaceful settlement of disputes between them as to their respective legal rights. … The power to dismiss a pending action for want of prosecution in cases where to allow the action to continue would involve a substantial risk that justice could not be done is thus properly described as an "inherent power" the exercise of which is within the "inherent jurisdiction" of the High Court. It would I think be conducive to legal clarity if the use of these two expressions were confined to the doing by the court of acts which it needs must have power to do in order to maintain its character as a court of justice.”
“The interests of justice in the abstract are best served by the ascertainment of the truth and there must be few cases where the interests of children can be shown to be best served by the suppression of truth. Scientific evidence of blood groups has been available since the early part of the century and the progress of serology has been so rapid that in many cases certainty or near certainty can be reached in the ascertainment of paternity. Why should the risk be taken of a judicial decision being made which is factually wrong and may later be demonstrated to be wrong?”
“… first that the interests of justice are best served by the ascertainment of the truth and second that the court should be furnished with the best available science and not confined to such unsatisfactory alternatives as presumptions and inferences.”
“What matters in this context is having a law which is clear and certain so that it avoids arbitrary conduct on the part of the state and provide a yardstick by which an independent court or tribunal can measure the lawfulness of conduct. On the other hand there are many contexts where knowledge of the precise scope of a law will enable individuals affected to regulate their behaviour. The two reasons are different facets of the same general principle, namely that the law must be as clear and certain as is practicable in all the circumstances.”
“The principle of separation of powers confers the remit of economic and social policy on the legislature and on the executive, not on the judiciary. It follows that the inherent jurisdiction cannot be regarded as a lawless void permitting judges to do whatever we consider to be right…” (2) The court’s powers are limited bys.19(2) of the Senior Courts Act 1981 : “Subject to the provisions of this Act, there shall be exercisable by the High Court— (a) all such jurisdiction (whether civil or criminal) as is conferred on it by this or any other Act; and (b) all such other jurisdiction (whether civil or criminal) as was exercisable by it immediately before the commencement of this Act (including jurisdiction conferred on a judge of the High Court by any statutory provision).”
“In my judgment, unattractive as the proposition remains, both the inherent jurisdiction to direct the testing of a child’s blood for the purpose of determining paternity and any consequential power to enforce that direction is entirely overridden by the statutory scheme underPart III of the Family Law Act 1969 . If the remedy is to be provided it is, accordingly, for Parliament to provide it.”
“Any determination of disputable fact may, the law recognises, be imperfect: the law aims at providing the best and safest solution compatible with human fallibility and having reached that solution it closes the book.”
“One need not perhaps, on this occasion, face the question whether, when technology or science makes an advance, so as to enable to be known with certainty that which previously was doubtful, such evidence ought to be admitted in order to destroy the binding force of a judgment or of a declaration with statutory force. It may be that within the limits within which a new trial may be ordered and, on the precedents, those limits are comparatively short, such evidence could be admitted for that purpose.”