‘M is extremely difficult to work with. She constantly changes support staff hours and asks for staff to be removed/changed due to minor incidences or a disliking of the personnel. She dismissed an excellent agency nurse after 30 minutes because she answered a telephone and another because she put on her coat 10 minutes before departure time’
‘The health professionals told us that they had significant concerns about the parents’ behaviour and that it was affecting their ability to provide care for E in the community. Jane Smith had brought along images of tubes that had been broken. Dr. Rosenthal stated that he thought the images showed the tubing had been cut. Jane Smith also brought recordings from the ventilator which she stated showed that the ventilator had been silenced. The information about the parents staying home and not attending the hospital following the incident on 3.5.12 and M not admitting that she had cut the tube, came from Dr. Rosenthal. The information about the care assistant being asked to leave the room on 11.2.13 would have come from either Jane Smith or one of the other community nurses present (Rachelle McMichael and Jasmin Cowdroy were the other CCHT nurses present). We were shown a diagram by Jane Smith which had seen the same tubing set up, with water in the cuff, and I believe Dave Winch had devised an experiment where he cut the tubing to see what would happen and the water spurted out, so we were informed that if the tubing had been cut when it was inflated it would have been very obvious to whoever was there that something had happened. But because there wasn’t any wetness, we were told the cuff must have been deflated prior to it being cut. I think that the purpose of that experiment was to show that it must have been done deliberately as E must have been left without the cuff inflated, as otherwise it would have been very obvious when it was cut. I can’t remember whether there was any discussion about when or how in E’s care the cuff should be deflated and shouldn’t be. The parents had wanted to take E up to Birmingham, for quite a long time, in fact ever since she returned home from Tadworth. Because of all the information being presented we were very worried if the parents take her to Birmingham then there would be no support services up there. The nursing team that work with E are from Surrey and wouldn’t travel up to Birmingham and Birmingham did not have the services ready. As far as I understood the parents had said they were just going themselves, and there wouldn’t be support staff, and that there couldn’t be because no staff in Birmingham know about her care and the staff from Surrey wouldn’t go up. I understood that she had a letter so she would go straight into hospital if anything went wrong. I think it was a significant concern that all of these issues had been raised and then parents were going to take her to a different part of the country where the health professionals in that area did not know about her care. Those at the meeting were of the opinion that E was at risk by being at home because of the information that we had been given by health. We asked if it would be possible for further support to go into the home and we were told by the health team that that wasn’t possible, they didn’t have the capacity to be able to do that which is why the decision was made to remove her Jane Smith, and I believe Rachelle McMichael and Laura King stated M difficult to work with. Most people that had worked with M and F, including myself, gave information about the parents saying the professionals were their friends. My experience is they find it very difficult to separate professional and non-professional relationships. CCHT, Jane Smith and the other nurses I have mentioned said M was manipulating CCHT gave the information about the parents calling tertiary centres rather than the community team The information about the parents being worried that E would be taken away came because there were a number of occasions, for example when I first started working with parents, they didn’t want social care input because they said they were worried we were going to take E away. When me and Jane Smith spoke to parents on 15.2.13 M had left the house and F said it was because she was worried it was because we were taking E away. I believe the police were going to attend the home because if the parents didn’t agree s.20 they were going to invoke PPO. CCHT had told us on numerous occasion that F could be aggressive and I think another reason the police attended was in case father was aggressive to us. I believe that there was a concern that the parents could break more equipment that could put E’s life at risk. During the strategy discussion we were informed by CCHT that although it had not threatened her life immediately, if that equipment hadn’t been sourced it would have put her life at risk, and there was a concern that the parents were aware there was no more equipment as it was the final use, and the equipment needed to be shipped over from America.’
‘Hindsight biasoccurs when actions that should have been taken in the time leading up to an incident seem obvious because all the facts become clear after the event. This tends towards a focus upon blaming staff and professionals closest in time to the incident. Outcome biasoccurs when the outcome of the incident influences the way it is analysed. For example when an incident leads to a death it is considered very differently from an incident that leads to no harm, even when the type of incident is exactly the same. If people are judged one way when the outcome is poor and another way when the outcome is good, accountability becomes inconsistent and unfair.’