“In the table in Part 3 (mobility activities), in relation to activity 1 (planning and following journeys), in descriptors c, d and f, for “Cannot” substitute “For reasons other than psychological distress, cannot.”
“We are steadfast in our support for the principles of DLA, as a non-means-tested cash benefit contributing to the extra costs incurred by disabled people. However, we need to ensure that the benefit reflects the needs of disabled people today, rather than in the 1990s. It is time that we had a disability benefit which is easier for individuals to understand and provides clear criteria and consistent awards. This is why I want to replace DLA with a new benefit – Personal Independence Payment. This is our opportunity to improve the support for disabled people and better enable them to lead full, active and independent lives. Personal Independence Payment will maintain the key principles of DLA, providing cash support to help overcome the barriers which prevent disabled people from participating fully in everyday life, but it will be delivered in a fairer, more consistent and sustainable manner. It is only right that support should be targeted at those disabled people who face the greatest challenges to leading independent lives. This reform will enable that support, along with a clearer, more straightforward assessment process. Personal Independence Payment will also be a more dynamic benefit – it will take account of changes in individual circumstances and the impact of disabilities, as well as wider changes in society, such as social attitudes and equality legislation.”
“… we intend to consider individuals’ ability to carry out a range of activities key to everyday life, including some related to a broader definition of mobility. Those least able to do so will be awarded the greatest support in the new benefit. There is some evidence to suggest that individuals whose impairments have the greatest impact are likely to experience higher costs. The new assessment will therefore allow us to prioritise support to individuals who face the greatest challenges and expense. As we implement the new assessment we will assess the extent to which it accurately meets these aims.”
“By definition, all people affected will be in receipt of Disability Living Allowance (DLA), the vast majority of whom will also be defined as disabled according to the Disability Discrimination Act (DDA) definition. Proposals to replace DLA with a new benefit that is better focused on helping disabled people to lead independent lives provide an opportunity to promote equality of opportunity to those least likely to live full and active lives. It is likely that some disabled people with lesser barriers to leading independent lives will receive reduced support, but this has been justified by the policy aim to focus support on those with greatest needs”
“There will be two components of Personal Independence Payment; a daily living component and a mobility component, each with a standard and enhanced rate.”
“We are developing the assessment for Personal Independence Payment to enable support to be targeted at individuals who require the most assistance to live full, active and independent lives. As part of this, we want it to reflect a more complete and structured consideration of the impact of an individual’s health condition or impairment, whether physical or mental, on everyday activities. The detail of the assessment is being developed in collaboration with a group of independent specialists in health, social care and disability, including disabled people themselves”
“It would not be practical to consider all everyday activities, so we propose that the assessment should focus on those key everyday activities which are essential to enabling participation and independence. It is positive that the activities we are proposing featured strongly in the consultation responses, both from individuals and from organisations. The assessment will consider an individual’s ability to carry out all of the activities, although some activities will relate to the daily living component and others to the mobility component. At this stage, we believe that the activities should be: Daily living component … Mobility component - planning and following a journey- moving around.”
“a. Can plan and follow a complex journey unaided. b. Cannot follow any journey alone due to such a journey causing overwhelming psychological distress to the claimant. c. Can follow a complex journey only (i) if the journey has been planned by another person; or (ii) with the continual prompting or intermittent assistance. d. Cannot follow any journey due to such a journey causing overwhelming psychological distress to the claimant. e. Can follow a simple journey only (i) if the journey has been planned by another person; or (ii) with the continual prompting or intermittent assistance.”
“for reasons of overwhelming psychological distress the claimant cannot follow any journey.”
“For those descriptors which refer to overwhelming psychological distress, there must be evidence of an enduring mental health condition. The level of distress must be so severe that the individual cannot manage day-to-day activities for several hours afterwards. There must be evidence that overwhelming distress has/would occur, not just that it might.”
“C: may apply to individuals with moderate learning disabilities, cognitive impairments or severe visual impairments… It may also apply in cases where an individual is unable to ask directions whilst travelling due to a health condition. E: may apply to individuals with severe learning disability, cognitive impairment or severe visual impairment (who have not adapted to their impairment)”
“This [mobility] activity has received numerous comments in relation to the wording ‘overwhelming psychological distress’, with particular reference to why we proposed to award more points for needing support to undertake journeys to familiar locations than where someone cannot undertake journeys because of overwhelming psychological distress. We believe that individuals who are unable to leave their homes as a result of overwhelming psychological distress will face additional costs and barriers and that therefore a high level of points should be awarded in recognition of these extra costs. However, we believe that individuals who can leave their homes but require considerable support to do so, such as needing constant supervision or to take more journeys by taxi, may face even higher extra costs and barriers, and that this reflects a higher overall level of need. We therefore consider it appropriate to award them higher priority in the benefit.”
“Some respondents suggested that descriptor B in the second draft was technically the same as descriptor E and our differentiation between the two was incongruous. However, we believe there is a significant difference between someone who requires prompting to leave the house in order to follow a journey and someone who is unable to follow a familiar journey at all unless accompanied by another person. We believe this justifies the differences between the descriptors. However, in light of this point and other comments referred to above, we have simplified the criteria and made some changes to terminology to make them clearer and simpler to apply. For example the differentiation between the new descriptor B and new descriptor F is clearer now.”
“For example: may apply to individuals who cannot due to their sensory or cognitive impairment work out where to go, follow directions or deal with unexpected changes in their journey when it is unfamiliar. It does not apply to claimants who require someone with them for support only, as this is covered by descriptor b. The accompanying person should be actively navigating for this descriptor to apply.”
“However, the fact that an individual has a particular mental condition does not tell you whether they can or cannot perform the activities in Schedule 1. What is crucial is how the condition affects the individual, i.e. what symptoms they have. These are individual to the patient. Symptoms of mental health conditions can include psychological distress. They can also include symptoms such as cognitive impairment, hallucinations, impulsive/risk-taking behaviour, paranoia, phobias, suicidal intent and many others. Cognitive impairment has been described in the guidance notes published for healthcare professionals carrying out assessments for Personal Independent Payment (the PIPAG) as including orientation (understanding of where, when and who the person is), attention, concentration and memory. Dr Boardman [the expert witness for the first intervener] describes it as a disruption of intellectual functioning such as loss of attention, poor concentration and muddled thinking. Cognitive impairment may be permanent (as in the case of an individual with a learning disability or who has suffered a brain injury). Cognitive impairment may be temporary (as in the case of an individual who experiences a dissociative state). Cognitive impairment may fluctuate (as in the case of an individual with early-stage dementia).”
“The Secretary of State has never contended that cost alone was the reason for making the 2017 Regulations. The objective was to restore the original policy intention, which was itself based on differing levels of functional need, but having regard also to the serious costs consequences of accepting the interpretation of the Upper Tribunal in MH. It is clear that the protection of a country’s economic system is a legitimate aim underArticle 14 of the Convention .”
“The distinction drawn by the descriptors is based on the expertise and experience of myself and my colleagues within DWP, and thoroughly tested to ensure its validity. I am not aware of any empirical research analysing this issue and in the absence of any definitive assessment of disability benefit entitlement purposes, this is the only basis upon which judgments of this sort can be made.”
“[to investigate] the extent to which the PIP assessment is an accurate measure of overall need (validity). It also considers how consistently the assessment performs, regardless of the assessor and the characteristics of the individual being assessed (reliability).”
“Article 19 - Living independently and being included in the community States Parties to this Convention recognize the equal right of all persons with disabilities to live in the community, with choices equal to others, and shall take effective and appropriate measures to facilitate full enjoyment by persons with disabilities of this right and their full inclusion and participation in the community, including by ensuring that: (a) Persons with disabilities have the opportunity to choose their place of residence and where and with whom they live on an equal basis with others and are not obliged to live in a particular living arrangement; (b) Persons with disabilities have access to a range of in-home, residential and other community support services, including personal assistance necessary to support living and inclusion in the community, and to prevent isolation or segregation from the community; (c) Community services and facilities for the general population are available on an equal basis to persons with disabilities and are responsive to their needs.”
“The impact of the 2017 Regulations is to draw an unprincipled distinction between different categories of disabled person, unconnected to their level of need or their level of functional impairment. Disabled persons who are unable to leave their homes at all due to overwhelming psychological distress will qualify under descriptor (e), but a disabled person who could leave his or her home and follow a journey, but only with another person, will not qualify for a PIP mobility award. This is fundamentally at odds with Article 19 CRPD’s guarantees.”
“..if there is no proportionate or rational connection between the exclusion of the psychological distress cohort from certain descriptors within the PFJ Activity and the extent to which their ability to carry out mobility activities is limited (or severely limited), then the exclusion of this cohort is incompatible with the statutory purpose of Part IV of the [Act] which is that entitlement to PIP or to PIP at a particular level is determined by reference to functional impairment and not by diagnosis. It amounts to excluding individuals from the scope of PIP because of the nature of their disability and not because of its impact on their ability to carry out mobility activities.”