“44 Mr Drabble further conceded that the respondent, having brought the proceedings to review the assessment judicially, bore the heavy burden of establishing that the assessment was unlawful. He did not attempt to persuade this court to ignore the strictures of Lord Brightman in Puhlhofer v Hillingdon London BC [1986] 84 LGR at 413 -414, put before us by Mr Bear. Lord Brightman said this: “My Lords, I am troubled at the prolific use of judicial review for the purpose of challenging the performance by local authorities of their function under the [Housing Act 1977 ]. Parliament intended the local authority to be the judge of fact. The Act abounds with the formula when, or if, the housing authority is satisfied as to this, or that, or have reason to believe this, or that. Although the action or inaction of a local authority is clearly susceptible to judicial review where they have misconstrued the Act, or abused their powers or otherwise acted perversely, I think that great restraint should be exercised in giving leave to proceed by judicial review. The plight of the homeless is a desperate one, and the plight of the applicants in the present case commands the deepest sympathy. But it is not, in my opinion, appropriate that the remedy of judicial review, which is a discretionary remedy, should be made use of to monitor the actions of local authorities under the Act save in the exceptional case. The ground upon which the courts will review the exercise of an administrative decision discretion is abuse of power – eg bad faith, a mistake in construing the limits of the power, a procedural irregularity or unreasonableness in “Wednesbury” sense – unreasonableness verging on an absurdity: see the speech of Lord Scarman in R v Secretary of State for the Environment, ex-parte Nottinghamshire County Council [1986] 84 LGR at 309. Where the existence or non-existence of a fact is left to the judgment and discretion of a public body and that fact involves a broad spectrum ranging from the obvious to the debatable to the just conceivable, it is the duty of the court to leave the decision of that fact to the public body to whom Parliament has entrusted the decision making power save in a case where it is obvious that the public body, consciously or unconsciously, are acting perversely.”
“Mr Clarke’s needs could be banded as substantial in view of his medical condition and support he needs to ensure that risks associated with his medical condition are properly managed with appropriate specialised services that are currently being provided by Independence Homes. It is recommended that Mr Clark’s support services be transferred to an appropriate local social service team in Sutton as soon as possible as he is now ordinarily resident in the area.”
“…. By any standards this is significantly active epilepsy and he is unable to care for himself without support or clinic attendances, medications being kept etc. Active epilepsy is a risk factor for sudden unexpected death in epilepsy, going into status (especially if there is non-compliance) and injuries associated with the dangers of falling. He would best be cared for in a placement where there are staff trained in the care of those with active epilepsy who can offer him the full medical and physical needs his complex condition requires. This needs to be 24 hours, 7 days a week. His current placement seems to provide the correct care for him. Often patients have worsening seizures and behaviour at times of change eg moving home. This needs to be kept in mind in his review”. ii) Julia Biggs, Epilepsy Nurse Specialist Independence Homes,4 December 2013 : “…. Perry has a seizure protocol and description of seizures that staff follow. Staff do not need to inform myself or Doctor MacDonald when Perry is experiencing seizures as our staff are highly trained in the detection and treatment of all seizure types. I am on call 24 hours a day to provide emergency support and advice to staff regarding prolonged seizure activity. All of our staff are trained in the administration of all emergency medications including Buccal Midazolom. We also have a bespoke alarm system which detects all seizure types and every time Perry has a seizure this will be conveyed through the alarm systems, through a pager to alert staff and staff can respond in under a minute. …. Perry has continued to experience 1-2 tonic clonic seizures (generalised seizures, during which he is unconscious) per month depending on triggers which can be anything from stress to self neglect or lack of money. This is however, always prone to fluctuation purely because epilepsy is not subject to a time table and seizures can occur at any time. Medication is not always effective and therefore his epilepsy remains active …. Perry has nocturnal seizures and therefore requires waking night staff to check on him and an alarm system to ensure his safety. He has a major risk of death if he is not monitored during the night and also at risk of severe injuries due to falls during seizures if not supported correctly ….” iii) From the Independence Homes’ chart relating to the claimant which comments that: “…. Perry is specifically in danger during the night due to nocturnal seizures …. Staff complete waking night checks every hour and ensure the use of his epilepsy alarms.”
“ …Whilst it does not accept that he needs as much as IH claim it has decided to increase the package. Therefore in addition to appropriate assistive technology (including an epilepsy seizure alarm to alert staff) it considers he needs: Sleep in support for 7 nights a week; Waking night support for 3 nights per month, in anticipation that your client will have up to 3 seizures a month during the night; Support for 3 hours for 7 days a week to assist him with taking medication, meal preparation, eating/drinking and showering/bathing; Support for 3 hours a week to assist him with cleaning, budgeting and managing bills/correspondence. The authority considers that all of this support can be provided in a non-specialist placement. It represents a direct payment of£661 per week. Also, your client will be referred to the authority’s Behaviour Management and Drug Project Teams for appropriate support. Should his needs change this package will be adjusted accordingly. We re-iterate the authority’s service provision decision is based on need and not on cost.”
“Thank you for your letter….I have read through it in detail and the two main queries you seem to have is whether or not I think he has “significantly active epilepsy”
“….Perry’s seizures are mainly nocturnal….Perry receives 24 hour waking night support and hourly checks throughout the night …. In 2013 Perry experienced 13 tonic clonic seizures….In 2014 Perry experienced 34 tonic clonic seizures…. ….Perry is prescribed Buccal Midazolam for prolonged tonic clonic seizures and clusters of seizures. In 2013, Perry required one dose of Midazolam, however, in 2014 Perry required seven doses of Buccal Midazolam. Buccal Midazolam is unlicensed in the community for adults. All of our staff are extensively trained in the administration of a large number of rescue medication…..”
“….Professionals should fully involve the person seeking support by listening to their views about how they want to live their lives and the type of care and support that best suits them and by helping them to make informed choices. This includes identifying the support the person needs to make a valued contribution to their community…”
“waking nights support, for three nights a month, in anticipation that your client will have up to three seizures a month during the night.”
“ 27 It is difficult to see how the original (or any subsequent) support plan was truly representative of Perry’s needs as it was so quickly and readily changed. It should also be pointed out, most importantly, that seizure activity cannot be anticipated and Perry has no warning signs when a seizure may occur. A waking night’s staff for three nights a month would put Perry in danger as it is nonsensical to suggest that assistance with medication is only needed some of the time. Additionally, Perry’s seizures are not limited to nights. They are whilst sleeping. This puts him at risk of death. So, he could easily (and often does) have a seizure whilst sleeping in the morning or early afternoon. That is why he needs 24 hour care. Sleep in support would not be able to respond to a seizure in time.”
“….We also have a bespoke alarm system which detects all seizure types and every time Perry has a seizure this will be conveyed through the alarm systems through a pager to alert staff and staff can respond within under a minute. ….Purely because epilepsy is not subject to a time table and seizures can occur at any time….. ….Perry has nocturnal seizures and therefore requires waking night staff to check on him and an alarm system to ensure his safety. He is at a major risk of death if he is not monitored during the night and also at risk of severe injuries due to falls during seizures if not supported correctly….”
“75 Allied Care arranged a further assessment visit for 19 February and although the meeting took place PC was clear that he did not want to move to Ashlong House and wanted to stay at Prospect Court. 76 Allied Care has attempted to progress the assessment process and in the absence of being able to complete this, they have confirmed that they are able to meet PC’s needs at Ashlong House in accordance with LBS’s support plan. Allied Care are confident that they can meet PC’s needs and have now confirmed that when the time comes for PC to move from Prospect Court they will formally assess him.”