“● Help in the home/respite care Families’ needs for help vary, as does provision in different parts of the country. Some parents of children with tracheostomies have no extra help. However, if your child needs very frequent suctioning at night, you may become too tired to cope by day. If you have other small children to cope with, extra help might be needed in the home or with taking children to school. Sometimes the social services department can provide help in the home or with other children. They are usually not able to provide someone to care for your child with a tracheostomy, although some areas can arrange this. Help at night can sometimes be provided by the health authority, using carers with nursing skills or training in the care of a tracheostomy. Respite care for a child can sometimes be arranged to allow you to have a break and perhaps go away with your other children”
“● School or nursery Many children with tracheostomies are successfully placed in ordinary (mainstream) schools and nurseries. They must, however, have a carer with them at all times who is ready to carry out suction and to perform an emergency tube change, if necessary. This carer does not have to be a nurse, but must be trained in tracheostomy care and must not have other duties that would take him or her away from your child”
“This care need not necessarily be from a qualified nurse. A healthcare assistant could be trained to carry out tracheal suction and would need to awaken [the mother] if she couldn’t quickly clear the tube.”
“It is now over 6 months since Paulette Blake, Continuing Care Nurse Specialist left her post at Haringey PCT. As you know, Paulette was responsible for arranging and coordinating [D’s] care package. The post is currently unfilled pending a decision on how best to use the resources across North Central London. In the meantime, I have arranged for the Camden and Islington Team to carry out an up to date Health Needs Assessment for [D]. This will look at [D’s] current needs and review her care packages; jointly with the North Middlesex Hospital Children’s Homecare Nursing Team.”
“3-4 nights, 10 hours a week trained carer support – social and health funded. This would leave 3-4 nights a week when mum will almost certainly have an interrupted nights sleep. It is essential to try and maintain continuity of carer/nurse for [D] and her mother. A trained health care assistant could very suitably provide this care. It is also essential to ensure that the times that mum wants the respite should be paramount and that the responsibility of the agency is to meet this. Once [D] is at nursery this should enable mum to have certain amount of free time. However at the moment mum is planning to stay with [D] at nursery as no one has been allocated to provide the one to one support that [D] will need in nursery to ensure her safety. Until [D] is of statutory school age the responsibility to fund this carer should fall to health and/or social. Until this is funded then the current arrangement should be continued whereby the agency nurse does 1 8 hour shift a week and should take [D] to nursery. During the weekend visits of [D’s] older sister, mum needs 4 hours of respite each day that her sister is home.”
“1. The PCT does not agree with the Local Authority that the PCT should provide an additional 10 hours per week of night respite care. The 20 hours of respite care per week is considered fair and adequate: indeed, it is understood that [D’s] family health visitor has recently been informed by her mother that [D] now sleeps though most nights, unless she is unwell; more generally, we are instructed that [D] is meeting all her developmental milestones and doing well – with communication as in other areas of her life. 3. As for the nursery, additional assistance could be considered, but the PCT’s staff originally put forward for consideration a contribution of one session, in conjunction with such provision from Social Services and Education subject to the outcome of the statementing process.”
“The normal practice is to base requirements on individual assessments of needs, and, as a benchmark, the PCT begins with 2 nights per week for children with a chronic disease or disability.”
“(1) Every local authority shall take reasonable steps to identify the extent to which there are children in need within their area. (6) Every local authority shall provide services designed- (a) to minimise the effect on disabled children within their area of their disabilities; and (b) to give such children the opportunity to lead lives which are as normal as possible.”
“(1) Where it appears to a local authority that any authority…mentioned in subsection (3) could, by taking any specified action, help in the exercise of any of their functions under this Part, they may request the help of that other authority…, specifying the action in question. (2) An authority whose help is so requested shall comply with the request if it is compatible with their own statutory or other duties and obligations and does not unduly prejudice the discharge of any of their functions”
“(1) Where a local authority having functions undersection 29 of the National Assistance Act 1948 are satisfied in the case of any person to whom that section applies who is ordinarily resident in their area that it is necessary in order to meet the needs of that person for that authority to make arrangements for all or any of the following matters, namely- (a) the provision of practical assistance for that person in his home; (b) the provision for that person of, or assistance to that person in obtaining, wireless, television, library or similar recreational facilities; ( c) the provision for that person of lectures, games, outings or other recreational facilities outside his home or assistance to that person in taking advantage of educational facilities available to him; then,…subject…[…to the provisions ofsection 7(1) of the Local Authority Social Services Act 1970 (which requires local authorities in the exercise of certain functions, including functions under the said section 29, to act under the general guidance of the Secretary of State)] [and to the provisions of section 7A of that Act (which requires local authorities to exercise their social services functions in accordance with directions given by the Secretary of State)], it shall be the duty of that authority to make those arrangements in exercise of their functions under the said section 29. 28A Application of Act to authorities having functions under theChildren Act 1989 . This Act applies with respect to disabled children in relation to whom a local authority have functions underPart III of the Children Act 1989 as it applies in relation to persons to whomsection 29 of the National Assistance Act 1948 applies.”
“It is the Secretary of State’s duty to continue the promotion in England and Wales of a comprehensive health service designed to secure improvement – (a) in the physical and mental health of the people of those countries, and (b) in the prevention, diagnosis and treatment of illness, and for that purpose to provide or secure the effective provision of services in accordance with this Act.”
“to provide throughout England and Wales to such extent as he considers necessary to meet all reasonable requirements – (a) hospital accommodation … (c) such facilities for the prevention of illness, the care of persons suffering from illness and the after-care of persons who have suffered from illness as he considers are appropriate as part of the health service; (f) such other services as are required for the diagnosis and treatment of illness.”
“34…On the contrary, section 2 of the 1970 Act expressly provided that local authorities were to comply with their obligations under that section in the exercise of their functions under section 29 of the 1948 Act “notwithstanding anything in any scheme made by the authority under section 29”
“In the event the housing authority were able, without in their view unduly prejudicing the discharge of any of their functions, to co-operate in arrangements whereby the children of Mr Smith did not suffer from lack of accommodation. The social services authority are responsible for children and the housing authority are responsible for housing. The two authorities must co-operate. Judicial review is not the way to obtain co-operation. The court cannot decide what form co-operation should take. Both forms of authority have difficult tasks which are of great importance and for which they may feel their resources are not wholly adequate. The authorities must together do the best they can.”
“It must be established that the authorities knew or ought to have known at the time of the existence of a real and immediate risk to the life of an identified individual or individuals from the criminal acts of a third party and that they failed to take measures within the scope of their powers which, judged reasonably, might have been expected to avoid that risk. The Court does not accept the Government’s view that the failure to perceive the risk to life in the circumstances known at the time or to take preventive measures to avoid the risk must be tantamount to gross negligence or wilful disregard of the duty to protect life. For the Court, and having regard to the nature of the right protected by Article 2, a right fundamental in the scheme of the Convention, it is sufficient for an applicant to show that the authorities did not do all that could be reasonably expected of them to avoid a real and immediate risk to life of which they have or ought to have knowledge. This is a question which can only be answered in the light of all the circumstances of any particular case.”
“Such positive obligations may exceptionally arise in the case of the handicapped in order to ensure that they are not deprived of the possibility of developing social relations with others and thereby developing their own personalities. In this regard, the Commission observes that there is no water-tight division separating the sphere of social and economic rights from the field covered by the Convention. In the case of the physically handicapped, the above-mentioned positive obligations require appropriate measures to be taken, to the greatest extent feasible, to ensure that they have access to essential economic and social activities and to an appropriate range of recreational and cultural activities.”
“As illustrated in the Cambridge Health Authority case[1999] 1 WLR 898 and Coughlan’s case[2001] QB 213 , it is an unhappy but unavoidable feature of state funded health care that regional health authorities have to establish certain priorities in funding different treatments from their finite resources. It is natural that each authority, in establishing its own priorities, will give greater priority to life-threatening and other grave illnesses than to others obviously less demanding of medical intervention. The precise allocation and weighting of priorities is clearly a matter of judgment for each authority, keeping well in mind its statutory obligations to meet the reasonable requirements of all those within its area for which it is responsible… However, in establishing priorities – comparing the respective needs of patients suffering from different illnesses and determining the respective strengths of their claims to treatment – it is vital for an authority: (1) accurately to assess the nature and seriousness of each type of illness; (2) to determine the effectiveness of various forms of treatment for it; and (3) to give proper effect to that assessment and that determination in the formulation and individual application of its policy.”
“Article 8 imposes no positive obligations to provide treatment,” and at p 996C approved this observation of Hidden J at first instance: “The Convention does not give the applicants rights to free healthcare in general or to gender reassignment surgery in particular. Even if the applicants had such a right it would be qualified by the authority’s right to determine healthcare priorities in the light of its limited resources.”
“The Convention does not give the applicants rights to free healthcare in general or to gender reassignment surgery in particular. Even if the applicants had such a right it would be qualified by the authority’s right to determine healthcare priorities in the light of its limited resources.”
“…it is plain that in this case there has occurred no interference with either the applicants’ private life or with their sexuality. The ECHR jurisprudence demonstrates that a state can be guilty of such interference simply by inaction, though the cases in which that has been found do not seem to go beyond an obligation to adopt measures to prevent serious infractions of private or family life by subjects of the state … Such an interference could hardly be founded on a refusal to fund medical treatment.”
“As Mr Pannick observed, if the applicants have no case under article 8 of failure to respect their private and family life, they could not, a fortiori, establish that they were victims of inhuman or degrading treatment under article 3 since the same essential issues arise: see Olsson v Sweden(1988) 11 EHRR 259 , 292, paras 85-87. And, as he also observed, a breach of the article requires “a particular level” of severity which, of course depends on the circumstances of the case. It is plain, in my view, that article 3 was not designed for circumstances of this sort of case where the challenge is as to a health authority’s allocation of finite funds between competing demands.”
“Article 3 of the ECHR addresses positive conduct by public officials of a high degree of seriousness and opprobrium. It has never been applied to merely policy decisions on the allocation of resources, such as the present case is concerned with. That is clear not only from the terms of article 3 itself, and the lack of any suggestion in any of the authorities that it could apply in a case even remotely like the present, but also from the explanation of the reach of article 3 that has been given by the Convention organs.”