“This is something that’s made when the glucose (sugar) in your body sticks to your red blood cells. Your body can’t use the sugar properly so more of it sticks to your blood cells and builds up in your blood. Red blood cells are active for around 2-3 months, which is why the reading is taken quarterly. If you have diabetes, an ideal HbA1c level is 48mmol/mol (6.5%) or below. A high HbA1c means you have too much sugar in your blood. This means you’re more likely to develop diabetes complications, like serious problems with your eyes and feet.”
“[‘H’] was diagnosed with Type 1 Diabetes in August 2014 and has been under my care since that date. The family has received a significant amount of support over the years from school, children's services’ involvement and the Paediatric Diabetes Team. From an early age there were problems with school attendance, which the school addressed directly, and with attendance to meetings arranged with the diabetes nurses, clinic attendance and the follow through of advice given by the diabetes team. There has been the use of the TAF framework and safeguarding escalation to try and support [‘H’] and his family. The family has changed in composition a number of times over the years with [‘H’] living with his mother but varying involvement from his father. One of our long-standing concerns is that [‘H’s] mother has had numerous health concerns of her own about which I do not have details but this has been a frequent barrier to her being able to carry out advice from the diabetes team or attending meetings / clinics. My concern at present comes from both the longevity of the time that we have been concerned about the supervision of [‘H’s] diabetes care and also from acute concerns about recent lack of contact with the diabetes team and in particular over the school summer holidays when there is no school safety net for him…The National Institute for Health and Care Excellence (‘NICE’) Guidelines recommend that children should be seen a minimum of every 12 weeks (i.e. 4 times per year). Our regional…and local guidance for children with poor glucose control is that this contact should be increased according to their HbA1c, which is the outcome measure of glucose control. The target HbA1c is 48mmol/mol. In January 2023, ‘H’s HbA1c was 69mmol/mol.”
“In summary my specific concerns about ‘H’ are: 1. Risk of persistently high glucose levels: On his last recorded HbA1c in January 2023 his blood glucose levels were persistently high. This puts him at acute risk of going into a diabetes coma (diabetic ketoacidosis) and having been diagnosed for 9 years at high risk of multiorgan failure as a young man eg blindness, kidney failure and heart disease; 2. His parents are not demonstrating that they are doing anything to bring these blood glucose levels down; 3. His parents are not engaging with the diabetes team to enable us to support them to improve his glucose levels; 4. During the summer holidays there is no school safety net for [‘H’]; For these reasons I feel that [‘H’] is at both acute and long-term risk.”
“[‘H’] is using the Dexcom G7 sensors for his glucose level monitoring. He uses the receiver to capture his sensor readings and his mother is now downloading the receiver on to the Dexcom Clarity platform and sharing his glucose sensor data and reports with the children’s diabetes team. Last downloaded data seen was up to9 October 2023 . I understand that mother has had initial issues with downloading blood glucose readings from his Expert meter on to the Glooko account, but now able to do this and last download seen on Glooko, was on9th October 2023 . With his new mobile phone, he will be able to use the following features: the Dexcom G7 app to view his own glucose levels instantly; the Dexcom G7 follow app to enable his mother to see his glucose readings in real time; the Clarity app which will enable him automatically to share his glucose levels with the cloud-based clarity platform which can be accessed by the diabetes team; The Glooko app which will bring together the combined information from his Dexcom CGMS and his Expert blood glucose meter. Management of diabetes at school: School plan done and a meeting with the school and diabetes nurse arranged to go through recent concerns with management of [‘H’s] diabetes in school. School visit on 2nd October2023...[‘H’] has had a period of sickness absence and was not aware about the importance of not exercising when blood sugars are high. She has agreed to relay this information to the other staff. She did also mention that ‘H’ does not have spare diabetes equipment in school, and this would prove useful in the event of him forgetting his kit. Diabetes nurse will speak to mum about this and drop a spare meter into school….no further concerns at present. Diabetes clinic attendance: [‘H’] attended the multidisciplinary clinic last on12/09/2023 with his mother. His diabetes control had improved as assessed by his glycosylated haemoglobin (HbA1c) level. This is a measure of glycaemic control. His HbA1c was previously 72 mmol/mol in August 2023, and now 64 mmol/mol in September 2023. Recommended HbA1c is less than 48 mmol/mol. Expectation of contact from parent:Parents were expected to contact the team to schedule an interim review for [‘H’], 4 weeks after his last clinic as he is currently being seen at a two-month interval based on his last HbA1c result. His mother contacted the team by text on the 18th of September 2023, requesting a review. He thereafter had a review of his diabetes the following day, on the19th September 2023 , by his diabetes nurse…The diabetes nurse also arranged to do a home visit on27th September 2023 , to help set up the Diabetes M app and the Dexcom G7 app on his new mobile phone. Unfortunately, this was an unsuccessful contact. Diabetes nurse arrived at the house on 27/09/23 at the scheduled time, only to find mum getting into the car with her friend…She explained that she was on her way to an emergency appointment for herself and had forgotten to make the nurse aware. Agreed to re-arrange the visit…Telephone call with mum as requested to review blood sugars took place last on9th October 2023 . Data reviewed from Dexcom. [‘H’] was still having frequent hypoglycaemia episodes (low blood sugar). Report showed a hypo frequency of 11%. Recommendation is for hypo frequency to be less than 3 - 4 % of readings. Mum reports losing the Dexcom G7 handset on Sunday and Monday. Hence gap in report. Mum described [‘H’] as having a sickness bug recently which may have contributed to the frequent hypos… Summary: There has been an improvement in [‘H’s] overall diabetes control as shown by his lower HbA1c level. Mum is now carrying out regular downloads of his Dexcom reader and Expert blood glucose meter. [‘H’] is now able to share his glucose data with the Diabetes team regularly. Concerns remain regarding frequency of hypos. It is the expectation that parents must contact the Diabetes team as an emergency if he has been experiencing hypoglycaemic episodes at a higher frequency than the guidance set out. That is, more than 3 episodes in a 7-day period. Concerns remain regarding parents ensuring [‘H’] has spare equipment at school.”
“Mother in my view appears to find it difficult to recognise and prioritise the needs of the children. In the event that the children continue to experience the same caregiving patterns as they have until now, I would be concerned that they would experience ongoing reinforcement of the disrupted attachment representations they already appear to have developed. In [‘E’s] case…I have outlined the distancing and inhibited nature of his attachment representations. He has learned that care will not be responsive to his needs in the moment. He has learned that he should suppress his own needs and desire for connection, perhaps even that expressing such needs may be counterproductive leading to rejection by significant caregivers. [‘H’] appears to have learned similar strategies to an extent, and the same concerns would be present in this sense. There are more positive signs to [‘H’s] presentation overall, but I would be concerned about his capacity to build on these positive elements if his caregiving environment remained unchanged. For both children, these learned strategies carry long term risks for their future. Both children risk having difficulties forming close relationships as children but also as adults, this would carry through into their own possible future roles as parents. The sense of distance and isolation may also put at risk their long-term mental health and wellbeing.”
“Both children’s rather distanced attachment representations may mean that in the event of such a move, they may not show significant superficial distress at the time. However, it is clear that both children are close to their mother and that the relationship between the three of them can have a rather enmeshed quality to it at times. Removing them from this close and enmeshed relationship will likely be distressing for them, whether they express it or not. It would therefore be important for carers to be mindful of both children’s limited capacity to show their feelings in this situation. In this situation, therapy may be appropriate for both children. I would suggest that play therapy would be a good option and may be available via statutory services such as CAMHS at the time. If not, privately commissioned therapists could be located…School may also be able to offer options such as ELSA (emotional awareness) support and this would be ideal for both children if available.”
“To summarise, [‘H’ and ‘E’] have continued to experience harm in their mother’s care, despite a significantly high level of input being provided. There has been a robust [working together agreement] in place whilst the children have remained on an Interim Supervision Order and despite this, [the mother] has failed to fully and meaningfully engage to ensure the children’s safety. Expert parenting assessments of both parents respectively and a global psychological assessment have been carried out…Both the parenting assessments and Dr Hardiman raise significant concerns in respect of [the mother’s] and [the father’s] parenting capacity. Dr Hardiman recommends long-term therapeutic input for both parents to address their own psychological needs. He clearly sets out the impact of both parents’ psychological profiles on their parenting capacity and subsequently the children’s emotional wellbeing in which he shares his worries for the children, providing a clear analysis and conclusion as to what these worries are. Thus, if the children continue to remain in [the mother’s] care, or alternatively are placed in [the father’s] care, they will continue to experience harm and their holistic needs will continue to be unmet. For this reason, the Local Authority recommend[s] Full Care Orders and for them jointly to be placed in foster care. The balance here, is weighing up the risk of them remaining in [the mother’s] care (or moving to [the father’s] care) versus the emotional impact on them of being removed from [the mother’s] care, something that they have been consistently against; with both boys being at an age where they are able to clearly express their views. Dr Hardiman is clear that it will likely be distressing for the children if this is the decision the Judge makes, however he also recommends appropriate therapeutic intervention to support them in these circumstances. A further issue is, considering whether or not the children’s outcomes, if placed in Local Authority care until their majority will be better. In particular, due to both boys’ more recent anti-social behaviours and [‘E’s] vulnerabilities engaging with unhealthy peers, should an appropriate foster placement not be identified, further risks are associated with them being placed in a residential setting. With this being said, [‘E’ and ‘H’s] welfare and safety must take priority and therefore although there are vulnerabilities…that may arise should the Court determine that a Full Care Order is made, I believe that given the ongoing risks as set out in this analysis and the Court papers, that the only safe and viable option is for them to be placed in Local Authority care…The children have continued to experience harm in the form of both physical and emotional harm, in addition to [the mother’s] minimal engagement throughout these proceedings which has heightened the risks, particularly in respect of [‘H’s] diabetes management (with the diabetes team concluding he is at ‘acute’ risk in [the mother’s] care). It is clear that [both parents] need to address their own difficulties via the therapeutic intervention recommended by Dr Hardiman; however, the recommended length of intervention is beyond the children’s timescales with no guarantee or certainty that meaningful engagement and change can be achieved and sustained.”