‘45. Finally, insofar as Sir Alan Ward and Arden LJ were suggesting that the test of the patient's wishes and feelings was an objective one, what the reasonable patient would think, again I respectfully disagree. The purpose of the best interests test is to consider matters from the patient's point of view. That is not to say that his wishes must prevail, any more than those of a fully capable patient must prevail. We cannot always have what we want. Nor will it always be possible to ascertain what an incapable patient's wishes are. Even if it is possible to determine what his views were in the past, they might well have changed in the light of the stresses and strains of his current predicament. In this case, the highest it could be put was, as counsel had agreed, that "It was likely that Mr James would want treatment up to the point where it became hopeless". But insofar as it is possible to ascertain the patient's wishes and feelings, his beliefs and values or the things which were important to him, it is those which should be taken into account because they are a component in making the choice which is right for him as an individual human being.’
‘13. In some cases, of which this is an example, the wishes and feelings, beliefs and values of a person with a mental illness can be of such long standing that they are an inextricable part of the person that he is. In this situation, I do not find it helpful to see the person as if he were a person in good health who has been afflicted by illness. It is more real and more respectful to recognise him for who he is: a person with his own intrinsic beliefs and values. It is no more meaningful to think of Mr B without his illnesses and idiosyncratic beliefs than it is to speak of an unmusical Mozart.’
‘Decisions about incapacitated people must always be determined by their best interests, but the starting point is their right to respect for family life where it exists. The burden is always on the State to show that an incapacitated person’s welfare cannot be sustained by living and being looked after by his or her family, with or without outside support.’
'I am not saying that there is in law any presumption that mentally incapacitated adults are better off with their families: often they will be; sometimes they will not be. But respect for our human condition, regard for the realities of our society and the common sense to which Lord Oliver of Aylmerton referred in In re KD …, surely indicate that the starting point should be the normal assumption that mentally incapacitated adults will be better off if they live with a family rather than in an institution – however benign and enlightened the institution may be, and however well integrated into the community – and that mentally incapacitated adults who have been looked after within their family will be better off if they continue to be looked after within the family rather than by the State. (116). We have to be conscious of the limited ability of public authorities to improve on nature. We need to be careful not to embark upon 'social engineering'
‘I didn’t think she was clear where home was’
‘why would I make her if she doesn’t want to?’
‘It is not a difficult job. I just need to turn up, see to food and medication, put her to bed. It is basic stuff. May be for two years max.’
‘Because she has expressed such a strong and clear wish to remain in her own home, and her relatively simple needs make it realistic to provide care in that setting, the aim must be to secure an arrangement that enables her to be at home for as long as her health allows.’
‘I asked RB where she would most like to live. I asked this question in various different ways but RB did not falter from stating she would only live in her home where she is living now [R Close]’ (C/45). The social worker noted that she had ‘a lovely home full of family mementoes, photos and personal possessions’ (C/45). c). On16 June 2014 , Dr M reported that RB was happy in her own home: ‘I feel safe here, I like it here and want to stay here … I haven’t got no problems.’
‘Mrs S asked RB if she knew where she was living at the moment. She replied, “I think it is R Close”.’
‘I don’t want to move from this area. I’ve lived here for years and I like it here’. ‘Yes, I like it here …. Peaceful and everything’. ‘I know people and get along with people here. I help them out they help me’. ‘When I asked where “home” is, she confirmed that she meant the care home … she said she liked E Care Home “because they look after me”.’ ‘I get on well with the people it's nice and quiet here … I don't get bored, I never get bored.’
"If I change the way I am you find that people take you as a soft person and you end up like everyone else, doing something you do not want to do."
"people should not be picking on me – if they do, I shout at them – there is no point complaining as no one does anything. What else can you do? So I do not think there is much wrong with me. Now they are all on my back – the judge, the carers." "
‘I have a personality disorder, I do not like people around me, it makes me aggravated, it can end in a scrap. I cannot take too much noise.’
‘PB called [the carer company] and was verbally abusive: “why the fuck did you send a carer to my mother? If you send a carer to my mother again I will fucking kick her out.” PB terminated the call.’
‘Given the lack of response, perhaps it was not surprising that matters reached this pitch.’
‘PB was verbally abusive and threatening towards a carer on the telephone. She terminated the call as a result. When PB called back he raised his voice and made threats: “If you put the phone down again I will fucking come round and smash the place up.” The second call was also terminated as a result of his threatening behaviour.’
‘Case notes record that PB called office on previous day accusing staff of not carrying out their job. He was very rude to Anna (office staff) and claimed there was no point in sending carers as they are not doing anything except giving medication. RB has been refusing personal care and PB expects carers to forcibly wash her. It has previously been explained to PB that carers are not permitted to do this.’
‘Case note records PB called office on previous day accusing staff of not carrying out their job. He was very rude to Anna (office staff) and claimed there was no point in sending carers as they are not doing anything except giving medication.’ ‘I agree I was rude to Anna … NB had been round and cancelled the evening care. Lot of issues. Not case that it’s justified, it’s frustration. Probably did swear on the phone. A bad habit … I did shout at her.’
‘RB has been refusing personal care and PB expects carers to forcibly wash her.’
‘Two young carers were sent, laughing as they went out, sending the wrong people, they did not wash her because they weren’t doing their job … RB was not refusing … Mum said they didn’t often offer to wash her.’
‘PB refused access to carer.’
‘PB was extremely rude and abusive towards reception staff at RB’s GP’s practice. He used foul language in the presence of other patients and a letter had to be written to him about his conduct.’
‘PB had to be removed from the hospital by security guards, he was disruptive and verbally agitated.’
‘He was too strong. I couldn’t throw him on the floor.’
‘I’d just been assaulted.’
‘Dr D reported that PB had been verbally abusive on the telephone and had been verbally abusive in the surgery in May when a letter had to be written to him.’
‘Dr D reported son, PB, who has been verbally abusive over the phone on 9th August. Previously verbally abusive in the surgery in May …’
‘PB could be heard raising his voice to RB on the telephone resulting in RB becoming very distressed and agreeing to end the call.’
‘Yeah, that’s correct … As soon as L arrived, I left anyway.’
‘You can’t blame me. It’s not my fault.’
“No, my mum doesn’t want to go.”
‘Unless he is willing to accept treatment, the prognosis must be very poor, as paranoid personality disorders do not improve spontaneously with time. The only alternative open to the Court in my opinion is to strengthen the existing boundaries, adhere strictly to them and use legal means to enforce them if necessary.’
‘Decisions about incapacitated people must always be determined by their best interests, but the starting point is their right to respect for family life where it exists. The burden is always on the State to show that an incapacitated person’s welfare cannot be sustained by living and being looked after by his or her family, with or without outside support.’
‘people come round but they are rushing all the time, they have not got time to cook, it is the same old routine, for example they have left my mother unwashed again.’
‘people should not be picking on me – if they do, I shout at them – there is no point complaining as no one does anything. What else can you do? So I do not think there is much wrong with me. Now they are all on my back – the judge, the carers.’ ‘Everyone is doing everything wrong to me – it is not a Court of Protection, it is a business, they are as corrupted as hell.’
‘I have a personality disorder, I do not like people around me, it makes me aggravated, it can end in a scrap. I cannot take too much noise.’
‘If she wants to see him more than that, I’d support that.’
‘She enjoys his cooking’
‘I’m less optimistic about his chances of keeping to such a routine having read the medical record, though not perhaps quite as pessimistic as Dr LS.’
‘No one denies the carers are over-worked.’
‘Two young carers were sent, laughing as they went out, sending the wrong people, they did not wash her because they weren’t doing their job … RB was not refusing … Mum said they didn’t often offer to wash her.’
‘I’ve broken the order, simple as that … I have to make sure the building is not burnt down … What am I supposed to do. I’m not going to go in the [witness] box.’
‘One of the carers was in Jamaica for three weeks. No one was shopping, cleaning, something was wrong. Care was sporadic. The carers were competing with me all the time … I was seeing mum five or six evenings a week … that was a good care plan … I was happy with it, as was mum.’
‘I knew that it would never work … I was trying to be flexible.’
‘Please let me know if you wish the court to take a different approach to that suggested above.’
‘No, I do not want to live with [PB], or any of my children and I like living on my own now and I just do not want to live with any of the kids; they are all too rude in their own ways and show no respect for each other — they are not rude to me though — but they just do not get along with each other.’ ‘[Her] daughters have regular contact with Mrs B, but she feels they interfere … Mrs B feels they are interfering in her life.’
‘My sisters and I think that PB just rubbishes everything that everyone else is trying to do and that will never change …’
‘If PB gets challenged by his sisters, he sees red! — but PB, in my opinion, is not always the one in the wrong and I myself witnessed a situation where PB had taken his mother to the bank and was late back and one of his sisters really had a go at him and she gave him a real verbal trashing — … one professional told me that they were driven to distraction by the arguments and constant telephone calls from the family day and night with the veiled threat that professionals were not “doing their jobs” — but all the family love their mother in their own ways and it is such a shame that they cannot come to an agreement.’ ‘Even fairly trivial things will escalate, for instance a daughter will telephone us and tell us that RB is waiting outside … and they want us to telephone the police.’
‘PB prepared food for our mother yesterday teatime. When the carer arrived he was still there and mum was eating the food he had prepared. The carer … wrote in the notes that he left when he saw her.’
‘I didn't take food to mum on Saturday because … Ro … said she had prepared food for Saturday … Also, mum does not need to go to the hairdresser's or chiropodist every two weeks, only when she needs to which Ro does.’
‘I said to mum, “You don’t have to accept this or move to YY. You still have a choice. You can go home.”’
‘If you put the phone down again I will fucking come round and smash the place up’
‘I let the Judge down for good reason and maintained my innocence by not signing into the undertakings’
‘PB found that all a bit upsetting and he apologises.’
‘Advocacy is taking action to help people say what they want, secure their rights, represent their interests and obtain services they need. Advocates and advocacy schemes work in partnership with the people they support and take their side. Advocacy promotes social inclusion, equality and social justice.’
"If I change the way I am you find that people take you as a soft person and you end up like everyone else, doing something you do not want to do."
"people should not be picking on me – if they do, I shout at them – there is no point complaining as no one does anything. What else can you do? So I do not think there is much wrong with me. Now they are all on my back – the judge, the carers." "
‘I have a personality disorder, I do not like people around me, it makes me aggravated, it can end in a scrap. I cannot take too much noise.’
‘PB called [the carer company] and was verbally abusive: “why the fuck did you send a carer to my mother? If you send a carer to my mother again I will fucking kick her out.” PB terminated the call.’
‘Given the lack of response, perhaps it was not surprising that matters reached this pitch.’
‘PB was verbally abusive and threatening towards a carer on the telephone. She terminated the call as a result. When PB called back he raised his voice and made threats: “If you put the phone down again I will fucking come round and smash the place up.” The second call was also terminated as a result of his threatening behaviour.’
‘Case notes record that PB called office on previous day accusing staff of not carrying out their job. He was very rude to Anna (office staff) and claimed there was no point in sending carers as they are not doing anything except giving medication. RB has been refusing personal care and PB expects carers to forcibly wash her. It has previously been explained to PB that carers are not permitted to do this.’
‘Case note records PB called office on previous day accusing staff of not carrying out their job. He was very rude to Anna (office staff) and claimed there was no point in sending carers as they are not doing anything except giving medication.’ ‘I agree I was rude to Anna … NB had been round and cancelled the evening care. Lot of issues. Not case that it’s justified, it’s frustration. Probably did swear on the phone. A bad habit … I did shout at her.’
‘RB has been refusing personal care and PB expects carers to forcibly wash her.’
‘Two young carers were sent, laughing as they went out, sending the wrong people, they did not wash her because they weren’t doing their job … RB was not refusing … Mum said they didn’t often offer to wash her.’
‘PB refused access to carer.’
‘PB was extremely rude and abusive towards reception staff at RB’s GP’s practice. He used foul language in the presence of other patients and a letter had to be written to him about his conduct.’
‘PB had to be removed from the hospital by security guards, he was disruptive and verbally agitated.’
‘He was too strong. I couldn’t throw him on the floor.’
‘I’d just been assaulted.’
‘Dr D reported that PB had been verbally abusive on the telephone and had been verbally abusive in the surgery in May when a letter had to be written to him.’
‘Dr D reported son, PB, who has been verbally abusive over the phone on 9th August. Previously verbally abusive in the surgery in May …’
‘PB could be heard raising his voice to RB on the telephone resulting in RB becoming very distressed and agreeing to end the call.’
‘Yeah, that’s correct … As soon as L arrived, I left anyway.’
‘You can’t blame me. It’s not my fault.’
“No, my mum doesn’t want to go.”
‘Unless he is willing to accept treatment, the prognosis must be very poor, as paranoid personality disorders do not improve spontaneously with time. The only alternative open to the Court in my opinion is to strengthen the existing boundaries, adhere strictly to them and use legal means to enforce them if necessary.’
‘I accept that when I become more ill things will change and then I may not be able to live on my own, but I am not ready for that yet and for now I want to stay here.’
‘… they do not get along with each other and they are always arguing with each other and I do not know why, but my son is very ill and they find it hard to understand him at times.’ ‘[PB] is not violent, but he can get upset and angry but he is alright really and does not hurt anyone.’ ‘I am not frightened of him and he does not trouble me and he does not argue with me, but neither does he always tell me when his coming — he just comes and makes me a cup of tea.’ ‘No, I do not want to live with [PB], or anybody or any of my children and I like living on my own now and I just do not want to live with any of the kids; they are all too rude in their own ways and show no respect for each other — they are not rude to me though — but they just do not get along with each other.’ ‘RB then spontaneously added that, “I accept that when I become more ill things will change and then I may not be able to live on my own, but I am not ready for that yet and for now I want to stay here.”’ ‘I asked her why she believed PB might upset people, and she replied, stating that, “PB is a rude, feisty person and he lives on his own.”’ ‘I asked her about the frequency of her son visiting her, and she replied, stating that, “Carers are different regarding visits, but I do not want PB to visit every day and I do get on with all of my carers but that is not the same as trusting them … one carer is so lazy she might as well be a statue for all the good she does, and she does not even offer tea or coffee!.........I am perfectly happy with PB visiting me two or three times a week.”’ ‘RB then spontaneously stated that, “My daughter C can be the worst of my children, but they can all be difficult and they can also make PB’s life difficult and C is very feisty and I do not always want to see her; I am happy with PB doing everything — C, the big one, always used to do everything but she was rude to me, she thinks that she can control everything and she works in a bank, I cannot remember which one, but she has been there for years and by now she probably owns some of it! L another daughter is a teacher and D does not work as she is not well and has hearing difficulties.”’ ‘RB then talked a little about her daughter C, stating that, “She is a director or something in that bank somewhere in the city — she has a big house and she is the one with the money, (RB laughs at this point with reference to banker’s pay) she is mean though, and never brings me orange juice here and saves all her money —maybe she now owns the bank!!!”’ ‘Remarking again about PB, RB stated that, “He can be very difficult, and maybe all my kids are bossy, but PB thinks that C could treat me better and maybe he thinks that C with all that money could indeed treat me better.”’ ‘I then asked RB again about residence, and her thoughts on the future, and she told me that, “Maybe when I am older I will go to an old people’s home, who knows? But not now.”’
‘I think that things are going reasonably well at the moment and I can calm PB down. PB is always looking for faults and has a note-book, but I have never witnessed a problem between mum and PB, but he does care for her on his own; he can be a bit over-controlling as well, but I have never really seen a real problem …’
‘Yes, I am prepared to give it a go.’
‘Our parents feel guilty about their divorce because they believe that PB, the youngest, suffered most by it’ [D21]. CL did not think that mediation would work. Contact with PB must be away from her mother’s home if she remained there: ‘ As long as she sees him and contact is managed, that is the key to everything, and the only way it will work is if visits are supervised and he does not interfere with her life and her care and if he is in her home, he should be supervised’ [D21]. ‘My sisters and I think that PB just rubbishes everything that everyone else is trying to do and that will never change, but we will not abandon her but if she ends up with PB, she will have to visit us, because we will not go there’ [D22]. Mr S’s opinion Mr S gave his opinion that it was in RB’s best interests to remain in her own home if a package of care could be made to work: She has also expressed the view to me that she would like all her children to stop interfering in her life, so it may be in her best interests for the Local Authority to ensure the delivery of good quality care, and for the family to focus on delivering love and affection [D23]. RB has indicated to me that she would like her contacts with all her children to be around two or three times a week, and it may be that all those involved in this dispute might like to reflect on her wishes. … although mediation is highly unlikely to bring about peace and love in this very complex dispute, if the parties could agree to such a process, I believe that there is a significant chance that some form of rapprochement could be agreed that elevates RB’s best interests above the conflicts from within the family and allows professional carers to do there jobs, and allows RB to remain where she wants to be for as long as possible. I think that RB’s needs for herself are relatively simple; she would like to be supported in her own home by carers and to have regular but not too frequent contact with her family. I think that these basics will be applicable to any environment in which she lives unless her condition deteriorates. It would be helpful if PB would agree to a Carer’s Assessment, and disclosure of appropriate records so that those working with this dispute can be reassured that no relevant information has not been disclosed. RB has suggested that she would like all her offspring to stop attempting to control her … RB’s own aspirations have been rather smothered by the powerful personalities of her offspring. … most opinions are sympathetic to RB’s wish to remain in her own home, and if this wish is jeopardized by the over-zealous devotion of PB to his mother, then this devotion has to be managed and there has to be no ambiguity in the care-plan unless, as noted throughout this report, mediation can achieve a different agreement. Therefore, at least for the time being, care should be provided by professionals and the love and affection can be provided by the offspring … I would not support personal care tasks being undertaken by PB, as it is a recipe for misunderstanding and conflict, in my opinion. Mr S’s observations of PB’s contact with his mother Mr S’s comments concerning RB’s one-hour contact with her son on13 February 2012 are, in my opinion, significant: ‘for almost the entire time that I was present in the home, PB remained at the dining table in his mother’s house seated in a position where visible contact between RB and PB was difficult if not impossible, and even audible communication was difficult, as PB talked to his mother without her being able to see him and whilst he was seated at the dining table looking at the wall in the opposite direction to his mother. Effectively, when talking to his mother, PB was talking to the wall and RB was getting irritated by her inability to hear or see her son [D19].’ ‘During my observation visit, PB remained seated at the dining table in an area of the ground floor attached to the kitchen, (although he kindly made me tea and did get up a couple of times to show me some items, such as his notebook of purchases made for his mother). RB and carer Z remained seated on the settee throughout, and no eye contact or physical contact was made between PB and RB. PB conducted all conversation with RB whilst at the dining table, either almost or completely out of the view of his mother. At no time did RB appear perturbed or upset by this rather unusual communication ‘configuration’ [D29]. Mr S’s addendum report of28 February 2012 In an addendum, Mr S stated that he had had an opportunity to speak with PH, on behalf of the local authority. Mr H agreed that mediation was worth trying and Mr S concluded by stating: ‘Although mediation may be relatively costly, if it succeeds and some form of consent can be accomplished, ultimately it could be less hurtful and abrasive, (and less expensive) than resolution through full legal remedy, the latter of which could potentially further erode RB’s dwindling estate to a greater degree than the former process’ [D32]. Mr S’s addendum report of8 May 2012 According to Mr S, professional opinion was: ‘unanimous in reporting that RB is settled in her own home for the medium term future, and that the difficulties are generated around and not by RB, through sensitive, volatile and powerful family dynamics, the actual care of RB itself presenting ‘conventional’ and low-key challenges in line with what might be expected given her diagnoses.’
‘It would therefore, in my respectful opinion, be most unfortunate if RB’s stable situation was inadvertently sabotaged by her offspring, all of whom fervently and genuinely believe that they have their mother’s best interests at heart, even though there are different interpretations of ‘best interests’ within the sibling group. At the present time the boundary of formal regulation appears to be successfully containing the family dynamic aspects of this dispute, but as commented on above, I would hope that mediation may offer the hope of rapprochement and consequential possible reengineering of the contact structure in the near future, (partly depending on whether or not mediation is agreed and takes place, and the outcome of such a process).’
“My overriding reason for reaching this finding is that at present PB’s behaviour – his anger and problems with self-control, the number of disagreements and disputes he is embroiled in, his approach to his sisters and some carers, his problems observing agreed rules and plans – makes this impractical. Although he has demonstrated a good understanding of his mother’s wishes and feelings, he has also demonstrated that he has a poor capacity to control his frustration and anger, to work with others and to accept the realities of the quality of care that can be provided by care agencies.”
“the meaning of statutory words is determined not by reference to any subjective intentions of the legislators, but by reference to the sense which an informed legal interpreter would give to them in the context in which they are used. The context of statutory words is both internal and external. The internal context requires the interpreter to situate the disputed words within the section of which they are part and in relation to the rest of the Act… (Sir Rupert Cross, ‘Statutory Interpretation’ 3rd Edition), “...to arrive at the true meaning of any particular phrase in a statute, that particular phrase is not to be viewed, detached from its context in the statute: it is to be viewed in connection with its whole context...”
“The contrasting language of sub-clauses (b) and (c) suggests to my mind that the legislature considered that the word “family” consisted of persons for all of whom the patient might prima facie be expected to make some provision. This, I think, indicates that the word does not include collateral relatives.”
“42. I agree that ‘prohibit’ refers to a total cessation of contact until further order, which is why the power is so intrusive as to be reserved to a judge…”
“43. No judge may empower a deputy to decide on P’s behalf that it is in their best interests to prohibit contact with a particular person, including a family member. However, unless the order appointing the deputy provides otherwise, a deputy may make decisions which in P’s best interests apportion visiting times between relatives, so as to avoid conflict and a breakdown of the care package. Obviously, that power has to be exercised in accordance with sections 1 and 4 and the court’s directions.”
“46. Likewise, asking someone to leave RB’s home because they are behaving in a way others present feel is aggressive or disruptive is not ‘prohibiting’ contact with them, merely bringing that particular episode of contact to an end. The situation is the same, I would say, where the deputy requires a short cooling-off period, along the lines of ‘don’t visit again until the care co-ordinator has phoned and discussed with you how best to deal with what’s just happened.’ That is managing contact.”
“47. No deputy can effectively facilitate contact with family members and paid carers in P's best interests without this kind of necessary short-term power to manage contacts "incidents" that have immediate detrimental effect on P. For reasons of public policy, the courts should be slow to create a situation where a deputy has no alternative but to apply to the court for an order each and every time the dispute involving contact occurs when the purpose of appointing a deputy is to deal with and manage periodic incidents and disagreements that hopefully can be resolved.”
“48. To sum up, unless the court’s order appointing them provides otherwise, in my opinion the welfare deputy’s powers include a power to terminate a particular episode of contact where that is necessary in P’s best interests. The deputy may also decide on P’s behalf that further contact shall not take place for a short period whilst the incident and its effect on P is being reviewed and discussions are taking place with the person concerned as to how best to regulate contact so as to avoid further incidents. That is all part of managing the contact arrangements so as to seek to ensure that P has contact that is in her best interests with all relevant ‘named individuals.”
“A person, though not prohibited, is restricted from using something if he is permitted to use it to a certain extent or subject to certain conditions but otherwise obliged not to use it”
‘I don’t know. I would prefer to answer that question in conjunction with a psychiatrist’ through a joint assessment.’