“When deciding whether it is in P’s best interests to appoint a deputy, the court must have regard (in addition to the matters mentioned in section 4) to the principles that - (a) a decision by the court is to be preferred to the appointment of a deputy to make a decision, and (b) the powers conferred on a deputy should be as limited in scope and duration as is reasonably practicable in the circumstances.” (a) a decision by the court is to be preferred to the appointment of a deputy to make a decision, and (b) the powers conferred on a deputy should be as limited in scope and duration as is reasonably practicable in the circumstances.”
“When appointing a deputy or deputies, the court may at the same time appoint one or more persons to succeed the existing deputy or those deputies – (a) in such circumstances, or on the happening of such events, as may be specified by the court; (b) for such period as may be so specified.” (a) in such circumstances, or on the happening of such events, as may be specified by the court; (b) for such period as may be so specified.”
“States Parties shall ensure that all measures that relate to the exercise of legal capacity provide for appropriate and effective safeguards to prevent abuse in accordance with international human rights law. Such safeguards shall ensure that measures relating to the exercise of legal capacity respect the rights, will and preferences of the person, are free of conflict of interest and undue influence, are proportional and tailored to the person’s circumstances, apply for the shortest time possible and are subject to regular review by a competent, independent and impartial authority or judicial body. The safeguards shall be proportional to the degree to which such measures affect the person’s rights and interests.” rights and interests.”
“It would enable decisions to be made for H by those who know her best, who can take account of her expressed wishes and feelings and make nuanced decisions for her at speed, without the necessity of repeated applications to the court. This is the least restrictive approach to protecting H.”
“It seems inappropriate to make provision for a young adult so far in advance in respect of events that may not occur for many decades, and it would be in H’s best interests for the court to defer appointing any successor deputies to make decisions on her behalf until after the death of one of her parents.”
“In the event that either or both of [H’s parents] are no longer able to make decisions as H’s deputy, or in the event of both of them predeceasing H, then the following shall be appointed: (1) In order of priority to act as successor deputy replacing the incapacitated or deceased current deputies as listed hereafter, A B and C. (2) One or more of the above listed successor deputies will replace the incapacitated or deceased current deputies, each or both of them, upon the following:- (a) In the event of each or both of the deputies, namely [H’s parents] dying, upon production of the death certificate by the surviving deputy, with an accompanying letter to this court, sent within 28 days. (b) In the event of one or both of the current deputies becoming incapacitated, due notice shall be given either by the deputy who is incapacitated, each or both of them providing written confirmation that they no longer are able or wish to act as a deputy, or alternatively on production of evidence in writing that he or she are either or both incapacitated from the duty of deputy, or a report from a general practitioner or medical consultant. Such medical evidence or due notice to be produced to this court as soon as practical by way of a covering letter. (c) In the event of any of the above listed successor deputies becoming either incapacitated or dying, the last named successor deputy shall be appointed by the same method as set out above. (3) The authority of the deputies appointed as successors shall be in the same terms as the appointment of [H’s parents] as obtained in the order of [date] made by Senior Judge Lush of this court.” (1) In order of priority to act as successor deputy replacing the incapacitated or deceased current deputies as listed hereafter, A B and C. (2) One or more of the above listed successor deputies will replace the incapacitated or deceased current deputies, each or both of them, upon the following:- (a) In the event of each or both of the deputies, namely [H’s parents] dying, upon production of the death certificate by the surviving deputy, with an accompanying letter to this court, sent within 28 days. (b) In the event of one or both of the current deputies becoming incapacitated, due notice shall be given either by the deputy who is incapacitated, each or both of them providing written confirmation that they no longer are able or wish to act as a deputy, or alternatively on production of evidence in writing that he or she are either or both incapacitated from the duty of deputy, or a report from a general practitioner or medical consultant. Such medical evidence or due notice to be produced to this court as soon as practical by way of a covering letter. (c) In the event of any of the above listed successor deputies becoming either incapacitated or dying, the last named successor deputy shall be appointed by the same method as set out above. (3) The authority of the deputies appointed as successors shall be in the same terms as the appointment of [H’s parents] as obtained in the order of [date] made by Senior Judge Lush of this court.”
“One of the defining features of people with autism is that they have impaired emotional reciprocity when interacting with others. In the less able with autism, with minimal verbal communication, I expect to see little identification of other people as personalities in their own right, and the person will either interact indiscriminately with others, or be less interested in interacting at all. In those interacting less, then familiar people are more likely to be approached as they are seen as tools to provide support or what is desired (such as food). In those of normal intelligence, the person can be lonely and want interaction including to the level of an intimate relationship – socially interacting with familiar people is usually preferred as it is more predictable and so less stressful. As such, for people with autism of all abilities – though a defining characteristic of autism is impaired ability to develop and maintain peer relationships – having a familiar person to interact with can be expected to be less stressful for the person with autism and, so, more successful for both parties.”
“One of the other defining features of people with autism is impaired communication. This works at several levels. For anyone with autism, one would expect to see a reduced ability to communicate emotions via their facial expression, body language and vocal variation of such things as pitch and emphasis. This means that anyone who does not know someone with autism may easily misinterpret how they are feeling. As such, anyone who does not know a person with autism, who has to work with them, needs to check with people who know them well, how to interpret the person’s expression and behaviour. It can be argued that this means that a person responsible for making a decision based on interpreting how a person with autism is feeling needs to be a person familiar with them, if they are non-verbal. However, it can also be argued that a familiar person is less likely to seek the views of others and reach a consensus, Certainly, a person who has good experience of working with different people with autism should have the skills to meet a new person with autism and discuss them with the familiar carers to form a judgment as good as a single familiar person. However, this would take time and be less immediate than the assessment of a familiar person.”
“I would argue that a deputy or attorney managing the property and finances of a person does not need a high level of personal knowledge of a person to act for them, given the universality of many of the issues regarding finances. I would argue that to be a deputy for a person’s health and welfare requires a much greater knowledge of the person’s life, emotional state, stressors, and possible desires than being a deputy for finances. As such, I would support the idea of family members who know a person well becoming deputies for health and welfare. In general, if it were anticipated that a successor deputy for health and welfare was likely to be needed in the next few years, then it would appear to me to be in a person’s best interests to appoint a successor at the same time as a deputy if there was a person who was known to have a good relationship with the subject and a good understanding of him or her who was willing to be successor.”
“H does not have any important or complicated rituals but she likes things to be kept the same – rooms to have the same arrangement, books to be kept in the same place (though she tolerates them being taken out to be used). Now she is going to C’s house, she is expecting the rooms there to stay the same. C has allowed her to have control in one room, but not the rest of the house.” “H will accept trying new activities ... if led by a familiar person.” “H has difficulty meeting new people. She tends to ignore them or not do what they want. It takes her at least six months to get familiar with someone, during which time she will need the new person to be shadowed by her parents or some familiar other.”
“What if, in a worst case scenario, the appointment of successor deputies was refused, and the appointed deputies were incapacitated. What would be the challenges presented if a person from outside H’s closer community became appointed to represent her?”
“As alluded to above, a new person coming in would have major problems communicating with H and assessing her reactions to various decisions made, even if the new person was familiar with autism. As such, they would find it necessary to take advice from within H’s current community and so be advised by the suggested future deputies, if they are at that time still part of her community. At the time of one of the deputies becoming incapacitated, I would expect one of the putative successors to apply to become a deputy, rather than have the court appoint someone from outside H’s community.”
“When addressing the appointment of successor deputies in general, Dr Carpenter states the following: “In general, if it were anticipated that a successor deputy for health and welfare was likely to be needed in the next few years, then it would appear to me to be in a person’s best interests to appoint a successor at the same time as a deputy if there was a person who was known to have a good relationship with the subject and a good understanding of him or her who was willing to be successor.”
“The Public Guardian recognises Dr Carpenter’s comments relating to H, and understands that in her case there is greater difficulty in forming new relationships, and also that the appointment of a successive deputy may provide an incentive for them to maintain contact in the future. However, for the appointment of a successive deputy to be deemed appropriate, consideration must be given to what may be in H’s best interests, not just at this given point in time, but for future best interests. The Public Guardian would have concerns if a successive deputy were appointed without first addressing how all relevant stakeholders would successfully interact with the future appointment, in a manner that was at no point detrimental to H. The Public Guardian, while unable to comment on the best course of action, also gives consideration to what would be the least restrictive option for H – the appointing of a successor deputy (or deputies) now, given the potential issues with having that appointment recognised in future, or, as Dr Carpenter states, and application made to the court at a future date by those closest to H at that point in time.”
“We suggested in our consultation papers that it might sometimes be appropriate for more than one manager to be appointed. Respondents agreed that this might be useful. … It may also be that the best candidate is already elderly and wishes to be sure that someone will take over at a time in the future. If there is a suitable person to take over then the court should be able to make such provision at the time when it is looking at the case. Some foreign jurisdictions also provide for a ‘standby’ manager to be appointed, to take over on a temporary basis if the manager should die or become incapable of acting. This is only likely to be necessary in the rare case of a disabled person who should not be left for however short a period without a manager to exercise certain powers. Provision for a standby manager may, however, allay the fears of those respondents who pointed out that many elderly carers of young disabled persons experience great anxiety about what will become of the younger person once they, the carers, have ‘gone’.”
“The vast majority of respondents agreed with our provisional view that powers of management over another human being should not be passed on by testamentary writing as if they were an item of property (Consultation Paper No 128, para, 6.21).”
“What happens if a deputy can no longer carry out their duties? When appointing a deputy, the court can also appoint someone to be a successor deputy (someone who will take over the deputy’s duties in certain situations). The court will state the circumstances under which this could occur. In some cases it will also state a period of time in which the successor deputy can act, Appointment of a successor deputy might be useful if the person appointed as deputy is already elderly and wants to be sure that somebody will take over their duties in the future, if necessary. Scenario: Appointing a successor deputy Neil, a man with Down’s syndrome, inherits a lot of money and property. His parents were already retired when the court appointed them as joint deputies to manage Neil’s property and affairs. They are worried about what will happen to Neil when they cannot carry out their duties as deputies any more. The court agrees to appoint other relatives as successor deputies. They will then be able to take over as deputies after the parents’ death or if his parents are no longer able to carry out the deputy’s role.”
“We have proposed that the judicial authority have power to appoint successive managers, and think it better in principle to deal with this situation in that way.”