“Decisions about incapacitated people must always be determined by their best interests, but the starting point is their right to respect for family life where it exists. The burden is always on the State to show that an incapacitated person’s welfare cannot be sustained by living and being looked after by his or her family, with or without outside support.”
'Pending the enactment of a checklist or other statutory direction it seems to me that the first instance judge with the responsibility to make an evaluation of the best interests of a claimant lacking capacity should draw up a balance sheet. The first entry should be of any factor or factors of actual benefit … Then on the other sheet the judge should write any counter-balancing disbenefits to the applicant … Then the judge should enter on each sheet the potential gains and losses in each instance making some estimate of the extent of the possibility that the gain or loss might accrue. At the end of that exercise the judge should be better placed to strike a balance between the sum of the certain and possible gains against the sum of the certain and possible losses. Obviously only if the account is in relatively significant credit will the judge conclude that the application is likely to advance the best interests of the claimant.’” The deprivation of liberty provisions '
‘7th February 2009 (Saturday) 1.45 pm C was collected by Mr T. At 3pm … support workers saw C standing outside Tesco’s on her own. They saw Mrs T sitting in her car ten feet away from C … and Mr T eating a meal. They watched C from the window; she was outside Tesco’s on her own for over an hour. The only time Mrs T got out of her car was to wipe C’s nose. It was running due to the weather being very cold and had been snowing. Mrs T then went back to her car. At 4.20pm Mr and Mrs T took C to their car and drove off.’ (12). There may also be a link with the discomfort associated with Mrs T’s management of her sister’s catheter, which is dealt with below. (13). Mrs T herself seems to have noticed a change in C’s behaviour or attitude at the time [a note dated14 February 2009 , C/94, records that Mrs T ‘said that there must be something wrong, as C did not seem very happy last weekend …’]. (14). There is evidence that Mrs T’s manner or behaviour can have a lasting, no doubt unintentional, effect on C. According to care home staff, on one occasion C was sitting at the dining table and was about to eat. Mrs T sat close to her in an ‘intimidating’ or ‘oppressing’ manner. Ever since, C had refused to eat any food at the table. Staff tried different tactics, for example asking C to sit at a side table elsewhere, but she would not eat at the table anymore. (15). I accept the care home manager‘s evidence that Ms K ‘has little motivation to either engage during visits by her sister or her husband or to happily leave [C Care Home] to visit her family. Over time [her] response to visits and her interaction with her sister has developed ‘into a disinclination to engage … This is perhaps seen in … turning her head away, sitting on her hands and becoming increasingly “vocal” in volume …’ (16). I find that Ms K’s response to Mr and Mrs T’s visits has ‘been consistent and sustained’
‘The members of my peer group are in an ongoing vegetative cognitive state … it is hard to find any reaction in them’ [C/178]. Nor do I do not accept Mrs T’s tentative suggestion that it may be the case that less able residents are put in a side-room when the home has visitors. I prefer JD’s and Mr P’s evidence that the other service users have similar IQ levels [C/224]; that the home is a suitable environment having regard to the abilities and needs of the other residents; and that she interacts well with others at the home. (b) Mr P noted good relationships between staff and C and expressed no concerns ‘arising from the ethnic mix’. (c) Ms K is provided with an appropriate level and range of weekend activities as well as leisure. (d) The use of a wheelchair on one occasion some time ago was explained by JD and dealt with. (I accept that C is mobile and that it is unlikely that Mrs T said that she was going to buy her sister a wheelchair). (e) I accept that when C first had a catheter many people struggled to get used to it. C ‘is very tiny and due to the way in which she moves, for example, by stamping her feet and sitting down abruptly, she can sit on her tube and it sometimes kinks.’
‘15 is an error. The 5 should not be there.’
‘Further examples of this issue may be seen in [Mrs T’s] approach to CK’s best interests in relation to her medical care. In August 2008, [Mrs T] discharged CK from [hospital] … against medical advice, transporting her from hospital in her hospital gown and slippers in the process.’
‘Mrs T has apparently found another home for C and has informed staff that C will not be returning. C’s new destination is not known. C has apparently not seen the home and staff are concerned as to [her] welfare.’ (35). I accept that Mrs T has on occasion telephoned the Emergency Duty Team and/or police inappropriately. (36). I accept that Mrs T ‘answered many questions that required only a yes or a no in reply not with a simple yes or no but with lengthy self-justification. Her manner in this respect made it easy to understand how particular and demanding she could be for a care home to deal with, and this was relevant when contemplating the likely success of a new placement.’